Abstract
Public concern about genetic discrimination, particularly access to insurance following genetic testing, has been reported in the literature. This paper aims to separate myths from realities regarding genetic discrimination in life insurance and to underline the positive aspects of allowing insurers access to relevant genetic information for underwriting purposes. We present a review of the literature pertinent to discrimination in life insurance and a comparative analysis of industries guidelines. There are few reported cases in the literature of validated genetic discrimination. However, the benefits to be gained by allowing insurers access to relevant genetic data could justify fostering a more active role in the use of genetic information by insurance companies.
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References
Lemmens T : Selective justice genetic discrimination and insurance: should we single out genes in our laws? McGill LJ 2000; 45: 347–412.
Anderlik MR, Rothstein MA : Privacy and confidentiality of genetic information: what rules for the new science. Ann Rev Genom Hum Genet 2001; 2: 401–433.
Wertz DC : ‘Genetic discrimination:’ results of a survey of genetics professionals, primary care physicians, patients and public. Health Law Review 1999; 7: 7–8.
Dicke AA : Genetic risk and voluntary insurance. Contingencies 1996; 52–56.
Munich Re Group. Genetic testing and insurance – a global view, 2000. Online: 〈http://www.munichre.com〉 (date accessed: May 5 2002), p 24.
Knoppers BM, Godard B, Joly Y : Life insurance and genetics: a comparative international overview; in Rothstein M (ed): Life insurance: medical underwriting and social policy (in press).
Rothstein MA, Anderlik MR : What is genetic discrimination, and when and how can it be prevented? Genet in Med 2001; 5: 354–358.
Read A : Genetics and insurance. Genetics Law Monitor 2002; 2: 4–7.
McGleenan T : Legal and policy issues in genetics and insurance. Community Genet 2000; 3: 45–49.
Aktan-Collan K, Haukkala A, Kääriäinen H : Life and health insurance behaviour of individuals having undergone a predictive genetic testing programme for hereditary non-polyposis colorectal cancer. Community Genet 2001; 4: 219–224.
MacDonald AS : Moratoria on the use of genetic tests and family history for mortage-related life insurance. Occasional Paper, 2002.
Subramanian K, Lemaire J, Hershey JC et al: Estimating adverse selection costs from genetic testing for breast and ovarian cancer : the case of life insurance. Journal of Risk and Insurance 1999; 66: 531–550.
Irish Insurance Federation: Code of practice on genetic testing, 2001. Online: http://www.iif.ie/codes.htm (date accessed: November 27 2001) art.13.
The Australian Investment and Financial Services Association Limited (IFSA): IFSA's policy on genetic testing, 1999 online: 〈Web/Attach.nsf/Attachments/WG++Genetics~Genetic+Testing+Policy~990200_IFSA+Policy+on+Genetic+Testing+%2Epdf/$File/990200_IFSA+Policy+on+Genetic+Testing+.pdf〉 (date accessed: October 16 2001) art. 10.5.
Canadian Institute of Actuaries, Statement on genetic testing and insurance, 2000, November 13, 2000, Canadian Institute of Actuaries, http://www.actuaries.ca/publications/2000/20065e.pdf (date accessed: August 1, 2002 p3.
Murray TH : Genetic exceptionalism and ‘future diaries’: is genetic information different from other medical information?; in Rothstein MA (ed): Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era. New Haven, 1997.
Consortium on Pharmacogenetics: Ethical and regulatory issues in research and clinical practice, 2002. online: 〈http://www.bioethics.umn.edu/events〉 (date accessed: December 2, 2001).
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The authors recognize the financial support from the Canadian Institute of Health Research for the project InHeRiT BRCAs.
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Joly, Y., Knoppers, B. & Godard, B. Genetic information and life insurance: a ‘real’ risk?. Eur J Hum Genet 11, 561–564 (2003). https://doi.org/10.1038/sj.ejhg.5200998
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DOI: https://doi.org/10.1038/sj.ejhg.5200998
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