Table 2 Distribution of summary scores
Maximum | Minimum | ||
|---|---|---|---|
Measure ( n) | Median (IQR) | No. (%) | No. (%) |
Summary scores | |||
CHQ PsS (36) | 46 (39, 52) | 0 | 0 |
CHQ PhS (36) | 34 (21, 45) | 0 | 0 |
HUI2 (32) | 0.93 (0.80, 1.00) | 11 (34) | 0 |
HUI3 (32) | 0.93 (0.76, 1.00) | 15 (47) | 0 |
VAS (35) | 0.76 (0.58, 0.84) | 0 | 0 |
CHQ Concepts | |||
Single-item general health (36) | 60 (30,85) | 5 (14) | 4 (11) |
General health perception (36) | 52 (43, 66) | 0 | 0 |
Physical functioning (36) | 75 (50, 92) | 7 (19) | 0 |
Bodily pain (36) | 60 (40, 80) | 5 (14) | 0 |
Single-item global behaviour (36) | 85 (60,100) | 11 (31) | 1 (3) |
General behavior (36) | 77 (65, 86) | 2 (6) | 0 |
Mental health (36) | 73 (65, 80) | 1 (3) | 0 |
Self-esteem (36) | 75 (56, 85) | 2 (6) | 0 |
Family activities (36) | 50 (25, 67) | 0 | 0 |
Family cohesion (36) | 85 (85, 85) | 6 (17) | 0 |
Parent time impact (36) | 56 (33, 67) | 2 (6) | 3 (8) |
Parent impact emotional (36) | 42 (25, 50) | 1 (3) | 5 (14) |
Role–physical (36) | 67 (33, 100) | 10 (28) | 5 (14) |
Role–emotional/behaviour (36) | 100 (67, 100) | 20 (56) | 0 |
HUI2 single-attribute utilities | |||
Sensation (34) | 1 (1, 1) | 28 (82) | 0 |
Mobility (35) | 1 (1, 1) | 29 (83) | 0 |
Emotion (36) | 1 (0.86, 1) | 20 (56) | 3 (8) |
Cognition (34) | 1 (0.86, 1) | 25 (74) | 0 |
Self-care (35) | 1 (1, 1) | 34 (97) | 1 (3) |
Pain (36) | 1 (0.95, 1) | 25 (69) | 0 |
HUI3 single-attribute utilities | |||
Vision (35) | 1 (1, 1) | 33 (94) | 0 |
Hearing (36) | 1 (1, 1) | 36 (100) | 0 |
Speech (35) | 1 (1, 1) | 31 (89) | 0 |
Ambulation (35) | 1 (1, 1) | 32 (91) | 0 |
Dexterity (36) | 1 (1, 1) | 35 (97) | 0 |
Emotion (36) | 1 (1, 1) | 31 (86) | 0 |
Cognition (34) | 1 (0.92, 1) | 25 (74) | 0 |
Pain (36) | 1 (0.92, 1) | 25 (69) | 0 |
