Table 1 Demographics of study cohorts

From: Health-related quality of life anticipated with different management strategies for paediatric febrile neutropaenia

 

Parent respondent N =155

Child respondent N =43

Respondent variables

 Median age in years (IQR)a

38.5 (34.5, 43.5)

15.4 (13.4, 16.9)

 No. male (%)

36 (23.2)

23 (53.5)

 No. married (%)b

131/153 (85.6)

 

 No. minimum education (%)

  

Professional/graduate

22 (14.2)

 

College/university

94 (60.6)

 

High school

36 (23.2)

 

Primary/middle school

1 (0.6)

 

Other

2 (1.3)

 

 No. full time employment (%)

79 (51.0)

 

 No. private health insurance (%)

125 (80.6)

 

 No. annual income $60 000 (%)b

67/154 (46.2)

 

 Median no. minutes travel to hospital (IQR)

60 (45.0, 80.0)

 

Febrile neutropaenia experience and cancer variables

 No. history of FN (%)

99 (63.9)

22 (51.2)

 Median years since diagnosis (IQR)

0.5 (0.1, 1.6)

0.2 (0.1, 0.6)

 No. cancer type (%)

  

Leukaemia

79 (51.0)

9 (20.9)

Lymphoma

18 (11.6)

17 (39.5)

Solid tumour

45 (29.0)

12 (27.9)

Brain tumour

12 (7.7)

5 (11.6)

Otherc

1 (0.6)

0 (0.0)

Current HRQL

 Median VAS score (IQR)

7.1 (4.3, 8.2)

7.2 (5.7, 8.5)

 Median HUI2 score (IQR)d

0.8 (0.6, 0.9)

0.8 (0.7, 0.9)

 Median HUI3 score (IQR)d

0.9 (0.6, 1.0)

0.8 (0.6, 0.9)

  1. Abbreviations: FN=febrile neutropaenia; HRQL=health-related quality of life; HUI=health utilities index; IQR=interquartile range; VAS=visual analogue scale.
  2. aMissing for 10 parents.
  3. bNot all respondents answered each question.
  4. cOther – haemophagocytic lymphohistiocytosis.
  5. dFor parent respondents: N=82 and 84 for HUI2 and HUI3 as HUI is not available by proxy report for children<5 years and respondents who answer ‘didn’t know’ or ‘refuse’ are considered missing; For child respondents: N=36 and 38 for HUI2 and HUI3.