Figure 1 | European Journal of Human Genetics

Figure 1

From: The EuroBioBank Network: 10 years of hands-on experience of collaborative, transnational biobanking for rare diseases

Figure 1

Scheme illustrating interactions of EBB with European organisations and networks. Coordination of RD-Connect is lead by Hanns Lochmüller, who has also been the coordinator of TREAT-NMD; coordinator of the Telethon Network of Genetic Biobanks is Mirella Filocamo; coordinator of BBMRI during the preparatory phase was Kurt Zatloukal, now BBMRI-ERIC has a general director which is Jan-Eric Litton; EURORDIS is coordinated by a Board of Directors composed of elected RD patient organization representatives from countries around Europe (www.eurordis.org); IRDiRC is governed by an executive committee, three scientific committees and a number of working groups (www.irdirc.org).

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