Table 2 Summary of multidimensional measure of informed choice
Measure | Description | Items | Reliability a | Range | Cutoff | Mean (SD) | Outcome |
|---|---|---|---|---|---|---|---|
Knowledge scale | Knowledge of NIPT, how it compares with standard DSS, options if the NIPT result is positive, knowledge about Down syndrome | 12 questions, multiple choice answers | 0.69 | 0–12 | ≥9=good knowledge | 11.1 (1.5) | Good knowledge: 95% |
Attitude scale | Attitude towards having NIPT | Five 5-point Likert items | 0.94 | 0–20 | 0–6=positive 7–13=neutral 14–20=negative | 2.2 (3.7) | Positive: 88% Negative: 2% Neutral: 10% |
Deliberation scale | Evaluating alternatives, considering consequences, weighing up pros and cons | Six 5-point Likert items | 0.84 | 0–24 | 0–12=deliberated | 5.2 (5.0) | Deliberated: 92% |
Uptake | Whether NIPT was accepted or declined | Choice of 4 options: NIPT, no further testing, straight for invasive, invasive and NIPT | — | — | — | — | NIPT: 94% NIPT and invasive: 4% No further testing: 2% |
Informed choiceb | Good knowledge, deliberated, attitude and behaviour match. | Calculated | — | — | — | — | Informed choice: 89% inc. deliberation 94% excl. deliberation |
