Table 1 Assessment criteria for ‘IRDiRC Recognized Resources’

From: ‘IRDiRC Recognized Resources’: a new mechanism to support scientists to conduct efficient, high-quality research for rare diseases

Mandatory criteria

Additional criteria

Within IRDiRC’s focus and mission

Functional and accessible with minimal downtime

Multinational connectivity and audience

Development and maintenance team

 

Clear and well-documented terms of use and license policies

 

Adheres to all relevant ethical and privacy policies and requirements

 

Process in place for quality control and life cycle management

 

Undergoes scientific peer review

 

Financially viable for the following 3 years

 

Documents its core impacts (eg, number of users, number of visits, etc)

 

Demonstrates relevant and ongoing activity in sharing and dissemination

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