Table 1 Demographic and clinical characteristics of MDS-patients—entire cohort and EQ-5D respondents
Total | EQ-5D Completeda | EQ-5D not completed | ||||
|---|---|---|---|---|---|---|
Characteristic | No. of Patients | % | No. of patients | % | No. of patients | % |
Entire cohort | 1 985 | 100.0 | 1 690 | 85.1 | 295 | 14.9 |
Age, years | ||||||
<60 | 214 | 10.8 | 187 | 11.1 | 27 | 9.2 |
60–75 | 818 | 41.2 | 707 | 41.8 | 111 | 37.6 |
75+ | 953 | 48.0 | 796 | 47.1 | 157 | 53.2 |
Gender | ||||||
Male | 1 202 | 60.6 | 1 039 | 61.5 | 163 | 55.3 |
Female | 783 | 39.4 | 651 | 38.5 | 132 | 44.7 |
Diagnosis (WHO 2001) | ||||||
RA | 355 | 17.9 | 283 | 16.7 | 72 | 24.4 |
RARS | 310 | 15.6 | 276 | 16.3 | 34 | 11.5 |
RCMD | 755 | 38.0 | 651 | 38.5 | 104 | 35.3 |
RCMD-RS | 118 | 5.9 | 102 | 6.0 | 16 | 5.4 |
RAEB-1 | 239 | 12.0 | 207 | 12.2 | 32 | 10.8 |
RAEB-2 | 9 | 0.5 | 8 | 0.5 | 1 | 0.3 |
MDS-U | 81 | 4.1 | 68 | 4.0 | 13 | 4.4 |
5q-Syndrome | 118 | 5.9 | 95 | 5.6 | 23 | 7.8 |
IPSS | ||||||
Low risk | 961 | 48.4 | 813 | 48.1 | 148 | 50.3 |
Intermediate-1 | 912 | 45.9 | 782 | 46.3 | 130 | 43.9 |
Low/int-1 no cytogeneticsb | 112 | 5.6 | 95 | 5.6 | 17 | 5.7 |
IPSS-R | ||||||
Very low risk | 493 | 24.8 | 433 | 25.6 | 60 | 20.3 |
Low risk | 746 | 37.6 | 646 | 38.2 | 100 | 33.9 |
Intermediate risk | 420 | 21.2 | 341 | 20.2 | 79 | 26.8 |
High/very high risk | 121 | 6.1 | 110 | 6.5 | 11 | 3.7 |
Unknown | 205 | 10.3 | 160 | 9.5 | 45 | 15.3 |
MDS-CI | ||||||
Low risk | 1 276 | 64.3 | 1 076 | 63.7 | 200 | 67.8 |
Intermediate risk | 606 | 30.5 | 525 | 31.1 | 81 | 27.5 |
High risk | 103 | 5.2 | 89 | 5.3 | 14 | 4.7 |
Haemoglobin (g/dL) | ||||||
≥10 | 1 076 | 54.2 | 913 | 54.0 | 163 | 55.3 |
<10 | 884 | 44.5 | 768 | 45.4 | 116 | 39.3 |
Unknown | 25 | 1.3 | 9 | 0.5 | 16 | 5.4 |
Red blood cell transfusionc | ||||||
No | 1 390 | 70.0 | 1 163 | 68.8 | 227 | 76.9 |
Yes | 595 | 30.0 | 527 | 31.2 | 68 | 23.1 |
