Table 3 Quotes from stakeholders describing a lack of structured cardiac neurodevelopmental follow-up in Australia.
Quote | Participant | Location |
|---|---|---|
“To be honest, there’s not a lot. There’s not a set pathway that’s for sure. I think the hospital probably uses a combination of referrals to a general paediatrician and a kind of a neurodevelopmental clinic in cardiology.” | Clinical Psychologist | Victoria |
“We don’t have a dedicated or separate cardiac model [for developmental follow-up]. So, we access general services here for those purposes.” | Paediatric Cardiologist | South Australia |
“There’s actually no real structured neurodevelopmental follow-up, other than if that’s recommended by us for them to go see a paediatrician.” | Paediatric Cardiologist | Western Australia |
“Not at this stage, we don’t have a specific pathway, or any specific clinic set up for them [children with CHD]. So, there’s no pathway, really structured pathway. I think we probably couldn’t say we have a model of care. I don’t think we do.” | Speech Pathologist | Northern Territory |
