Abstract
The concept of a comprehensive and person-centred approach in healthcare is not new and it is the basic principle that is embedded in the International Classification of Functioning, Disability and Health (ICF) framework. However, the implementation of a comprehensive and person-centred approach has not been fully translated into research development in people living with spinal cord injuries (SCI). This approach in research is important as the perspectives of persons living with SCI should be equally valued drivers in any research intended to provide a direct or indirect outcome to people living with a SCI. This perspective paper will discuss some of the limiting factors and provide some examples of previous and current successful steps being taken towards the worldwide implementation of this approach. Finally, this paper will suggest some of the steps needed to implement this person-centred model in research in people with SCI.
Similar content being viewed by others
Log in or create a free account to read this content
Gain free access to this article, as well as selected content from this journal and more on nature.com
or
References
McCormack B, Borg M, Cardiff S, Dewing J, Jacobs G, Janes N, et al. Person-centredness—the ‘state’ of the art. Int Pract Dev J. 2015;5:1–15.
Cook NF, McCance T, McCormack B, Barr O, Slater P. Perceived caring attributes and priorities of preregistration nursing students throughout a nursing curriculum underpinned by person-centredness. J Clin Nurs. 2018;27:2847–58.
Phelan A, McCormack B, Dewing J, Brown D, Cardiff S, Cook N, et al. Review of developments in person-centred healthcare. Int Pract Dev J. 2020;10:1–29.
Rock D, Cross SP. Regional planning for meaningful person-centred care in mental health: context is the signal not the noise. Epidemiol Psychiatr Sci. 2020;29:e104.
World Health Organisation. WHO global strategy on integrated people-centred health services 2016-2026. Geneva. Switzerland: World Health Organisation; 2015.
Edgar DA, Wilson VJ, Moroney T. Which is it person-centred culture, practice or care? It matters. Int Pract Dev J. 2020;10:8-1-8-17.
Stucki G, Reinhardt JD, Cieza A, Brach M, Celio M, Joggi D, et al. Developing Swiss paraplegic research: building a research institution from the comprehensive perspective. Disabil Rehabil. 2008;30:1063–78.
Stucki G, Bickenbach J. Editorial. Spinal Cord. 2021;59:361–2.
Hoekstra F, Gainforth HL. Principles and related strategies for spinal cord injury research partnership approaches: a qualitative study. Evid Policy. 2021. https://doi.org/10.1332/174426421X16161715996124.
Hoekstra F, Schaefer L, Athanasopoulos P, Gainforth HL. Researchers’ and Research Users’ Experiences With and Reasons for Working Together in Spinal Cord Injury Research Partnerships: A Qualitative Study. Int J Health Policy Manag. 2021. https://doi.org/10.34172/ijhpm.2021.35.
Woodill G, Willi V. Independent living and participation in research: A critical analysis. Canada: Centre for Independent Living Toronto (CILT); 2006.
Gainforth HL, Hoekstra F, McKay R, McBride CB, Sweet SN, Martin Ginis KA, et al. Integrated knowledge translation guiding principles for conducting and disseminating spinal cord injury research in partnership. Arch Phys Med Rehabil. 2021;102:656–63.
Anderson KD. Consideration of user priorities when developing neural prosthetics. J Neural Eng. 2009;6:055003.
Anderson KD. Targeting recovery: priorities of the spinal cord-injured population. J Neurotrauma. 2004;21:1371–83.
Farrehi C, Pazzi C, Capron M, Anderson K, Richardson B, Stillman M. How individuals with spinal cord injury in the United States access and assess information about experimental therapies and clinical trials: results of a clinical survey. Spinal Cord Ser Cases. 2020;6:103.
Bradbury H, Glenzer K, Apgar M, Embury DC, Friedman V, Kjellström S, et al. Action Research Journal’s seven quality choicepoints for action oriented research for transformations. Action Res. 2020;18:3–6.
Frontera WR, Fuhrer MJ, Jette AM, Chan L, Cooper RA, Duncan PW, et al. Rehabilitation medicine summit: building research capacity— executive summary. Phys Ther. 2006;86:285–98.
Rokstad AM, Vatne S, Engedal K, Selbaek G. The role of leadership in the implementation of person-centred care using Dementia Care Mapping: a study in three nursing homes. J Nurs Manag. 2015;23:15–26.
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Competing interests
The authors declare no competing interests.
Additional information
Publisher’s note Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Rights and permissions
About this article
Cite this article
Bochkezanian, V., Anderson, K.D. Comprehensive and person-centred approach in research: what is missing?. Spinal Cord 60, 187–189 (2022). https://doi.org/10.1038/s41393-021-00735-0
Received:
Revised:
Accepted:
Published:
Issue date:
DOI: https://doi.org/10.1038/s41393-021-00735-0