Abstract
Study design
Methodological study design: translation and test-retest reliability testing.
Objectives
To translate International Spinal Cord Injury Quality of Life Basic Data Set (ISCIQoLBDS) Version 1.0 into Hindi language and conduct reliability testing of Hindi ISCIQoLBDS (hISCIQoLBDS).
Setting
The study was conducted at Indian Spinal Injuries Centre, New Delhi, India.
Methods
The study was done in two phases—translation of ISCIQoLBDS Version 1.0 into Hindi language and reliability testing of hISCIQoLBDS. In the translation phase, the data set was forward translated by two independent professional translators. Then backward translation was done by another pair of professional translators to ensure the essence of the data set. For their feedback, field testing of hISCIQoLBDS was done on ten individuals with Spinal Cord Injury (SCI). After this, an expert panel reviewed their recommendations, and the final hISCIQoLBDS was administered on 50 participants with SCI for test-retest reliability of the data set.
Results
hISCIQoLBDS was found to be equivalent to ISCIQoLBDS Version 1.0 on back-translation. It showed high test-retest reliability for each item in the data set. Intraclass Correlation Coefficient (95% CI) for items of hISCIQoLBDS was within the range of (0.91–0.98).
Conclusion
The hISCIQoLBDS is a stepwise systematic Hindi translation of the ISCIQoLBDS Version 1.0 for the Hindi literate population with high test-retest reliability. It can facilitate international data exchange on the quality of life (QoL) of Hindi literate individuals with SCI.
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Data availability
The datasets generated and analyzed during the current study are available from the corresponding author on request.
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Funding
The study was self-funded.
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Contributions
MN was an independent reviewer and was responsible for data set translation, data collection, field testing, data entry into spreadsheets, and paper writing. RA was an expert in the translation panel and was responsible for the planning of methodology, expert panel meetings, data analysis, and review of the paper. CK was an expert in the translation panel and was responsible for data set translation, obtaining informed consent field testing, and review of the paper. NG was an expert in the translation panel and was responsible for documenting expert panel adjudication reports.
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The authors declare no competing interests.
Ethics approval
The study was approved by the Institution Ethics Committee (IEC) of Indian Spinal Injuries Centre, New Delhi, India (Reference Number – ISIC/RP/2019/017a). We certify that all applicable institutional and governmental regulations concerning the ethical use of human volunteers were followed during this research.
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Nijhawan, M., Aggarwal, R., Kataria, C. et al. Hindi translation and reliability testing of the international spinal cord injury quality of life basic data set version 1.0. Spinal Cord 60, 784–788 (2022). https://doi.org/10.1038/s41393-022-00785-y
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DOI: https://doi.org/10.1038/s41393-022-00785-y
