Table 1 Mean (95% CI) summary measures of functional independence, physical health and activity/participation problem burden, and percentage (95% CI) of participants reporting issues with individual secondary health conditions or activity/participation problems, by QoL subgroup in Aus-InSCI (n = 1579).
Poor QoL (n = 192) | Neither (n = 379) | Good QoL (n = 947) | ||
|---|---|---|---|---|
Summary measures (0–100): | SD | Mean (95% CI) | Mean (95% CI) | Mean (95% CI) |
m-SCIM-SR score | 28 | 52.8 (48, 57) | 59.6 (56, 63) | 64.4 (62, 67) |
Secondary health conditions problem burden score | 16 | 46.9 (44.3, 49.6) | 38.1 (36.4, 39.7) | 28.0 (27.0, 29.0) |
Maximum pain intensity | 30 | 68.9 (65.4, 72.5) | 57.7 (55.0, 60.5) | 42.9 (41.0, 44.8) |
Activity/participation problem burden score | 22 | 52.6 (49, 56) | 39.1 (37, 42) | 21.8 (20, 23) |
Individual issues: | % (95% CI) | % (95% CI) | % (95% CI) | |
Health conditions: | ||||
% reporting severe-extreme problems with: | ||||
Pain | 79.3 (72, 85) | 59.2 (54, 65) | 33.5 (30, 37) | |
Sexual dysfunction | 75.6 (68, 82) | 66.2 (61, 71) | 53.4 (50, 57) | |
Sleep problem | 54.0 (46,61) | 36.1 (31, 42) | 21.2 (18, 24) | |
Contractures | 48.7 (41, 56) | 38.0 (33, 44) | 25.5 (22, 29) | |
Bladder dysfunction | 46.8 (39, 54) | 29.6 (25, 35) | 19.3 (16, 22) | |
Muscle spasms or spasticity | 46.1 (39, 54) | 42.4 (37, 48) | 23.7 (21, 27) | |
Bowel dysfunction | 45.8 (38, 53) | 32.7 (28, 38) | 20.7 (18, 24) | |
Circulatory problems | 39.5 (32, 47) | 26.1 (21, 31) | 18.0 (15, 21) | |
Urinary tract infections | 32.6 (26, 40) | 21.0 (17, 26) | 14.9 (12, 18) | |
Pressure injuries | 22.6 (17, 30) | 15.2 (11, 20) | 8.1 (6, 10) | |
Autonomic dysreflexia | 21.5 (16, 28) | 11.7 (8, 16) | 7.3 (5, 10) | |
Postural hypotension | 18.8 (13, 26) | 13.6 (10, 18) | 5.2 (3, 7) | |
Respiratory problem | 16.8 (12, 23) | 8.2 (5, 12) | 4.4 (3, 6) | |
Injuries due to loss of sensation | 16.3 (11, 23) | 11.1 (8, 15) | 5.5 (4, 8) | |
Activity/participation problems: | ||||
% with no problem at all: | ||||
Carrying out daily routine | 4.7 (2, 8.7) | 11.7 (8.7, 16) | 36.6 (33, 40) | |
Doing things for relaxation and pleasure | 11.1 (7, 17) | 24.4 (20, 29) | 52.9 (49, 57) | |
Getting household tasks done | 11.4 (7, 17) | 18.3 (14, 23) | 39.3 (36, 43) | |
Handling stress | 12.2 (8, 18) | 13.1 (10, 17) | 39.8 (36, 43) | |
Getting where you want to go | 15.3 (10, 21.2) | 25. 3 (21.2, 30) | 52.3 (49, 56) | |
Intimate relationships | 18.4 (13, 25) | 24.9 (20, 30) | 44.4 (41, 48) | |
Providing care and support to others | 19.7 (14, 27) | 29.0 (24, 34) | 46.8 (43, 51) | |
Looking after health, food, exercise, medicines | 23.8 (18, 31) | 38.5 (33, 44) | 62.7 (59, 66) | |
Using public transport | 27.5 (21, 35) | 43.4 (38, 49) | 58.4 (55, 62) | |
Interacting with people | 36.2 (29, 44) | 38.8 (34, 44) | 71.2 (68, 74) | |
Using private transportation | 36.3 (29, 44) | 51.5 (46, 57) | 71.5 (68, 75) | |
% with severe-extreme problem: | ||||
Carrying out daily routine | 51.3 (40, 65) | 23.6 (17, 31) | 8.5 (6, 12) | |
Doing things for relaxation and pleasure | 48.7 (37, 62) | 22.3 (16, 30) | 6.2 (4, 9) | |
Getting household tasks done | 53.5 (41, 68) | 33.2 (26, 42) | 11.4 (8, 15) | |
Handling stress | 38.1 (28, 51) | 23.9 (18, 32) | 7.2 (5, 10) | |
Getting where you want to go | 48.7 (37, 62) | 25.1 (19, 33) | 10.2 (7, 14) | |
Intimate relationships | 66.5 (54, 80) | 46.3 (38, 56) | 24.1 (20, 29) | |
Providing care and support to others | 50.6 (38, 65) | 36.5 (29, 46) | 16.2 (12, 21) | |
Looking after health, food, exercise, medicines | 27.0 (18, 39) | 11.5 (7, 18) | 4.2 (2, 7) | |
Using public transport | 50.3 (40, 63) | 36.5 (29, 46) | 21.2 (17, 26) | |
Interacting with people | 25.5 (17, 37) | 16.2 (11, 23) | 3.0 (1, 5) | |
Using private transportation | 24.7 (16, 36) | 14.7 (10, 21) | 7.4 (5, 11) |
