Table 1 Overview of items used to measure feasibility and informed choice
From: Feasibility of couple-based expanded carrier screening offered by general practitioners
Topics | Quantitative | Qualitative | |
|---|---|---|---|
Instrument, time point (subject) | Items/measures | ||
A. Feasibility | |||
1. Organizational aspects of GP-provided ECS test offer | Checklist at T1 (GP) | Start and end time of pre-test counselling sessions | Barriers and facilitators of: |
• Duration of pre-test counseling | |||
• Both partners attending pre-test counselling | |||
• Communicating test-result | |||
• Referrals | |||
2. Evaluation of care: competence and satisfaction | Survey at T1 (couples) | Patient satisfaction (overall + CGSI(1), see supplementary materials | • Self-judgment GPs during interviews |
• Professional judgment genetics professional after supervision | |||
3. Evaluation of pre-test counselling: content | Checklist at T1 (GP) | Items discussed during counselling. | Barriers and facilitators of: Discussing the aspects included on the checklist |
Survey at T1 (couples) | Importance and length of items discussed during counselling. | ||
4.Views about implementation | Interview at T3 (GP) | N.A. | |
B. Informed choice | |||
Informed choice | Survey at T0 and T1 (couples) | Informed choice measured using adapted MMIC(2), see supplementary materials | |
