Table 2 Themes and subthemes on societal implications of EUCS discussed per article.

From: Societal implications of expanded universal carrier screening: a scoping review

Reference

Medicalization

Stigmatization & discrimination

Challenges on achieving equal access

 

Fear of supply push

Fear of routini-zation

Slippery slope

Expectations regarding stigmatization

Expectations regarding discrimination

Experiences with occurrence stigmatization and discrimination

Access of ancestry-based vs. pan-ethnic screening

Reaching the target population

Costs and funding

Wilfond [32]

 

+

 

+

 

+

 

+

+

Achterbergh [37]

       

+

 

Kalokairinou [7]

     

+

  

+

Raz [6]

 

+

   

+

   

Lakeman [42]

     

+

   

Zlotogora [56]

 

+

       

Zlotogora [57]

     

+

   

Cowan [4]

  

+

      

Modra [34]

 

+

     

+

 

Frumkin [55]

 

+

   

+

   

De Wert [20]

   

+

+

    

Jans [41]

   

+

     

Ready [30]

 

+

  

+

    

Aspinall [35]

   

+

     

McGowan [29]

 

+

+

+

   

+

 

Massie [33]

      

+

  

Rose [31]

       

+

+

Langlois [28]

   

+

  

+

  

Kihlbom [14]

+

+

+

+

+

    

Van der Hout [2]

+

+

 

+

+

 

+

+

 

Henneman [5]

   

+

+

+

+

+

+

Azimi [25]

        

+

Holtkamp [38]

 

+

 

+

  

+

+

+

Ekstrand Ragnar [50]

+

        

Matar [53]

 

+

+

+

+

   

+

Holtkamp [39]

   

+

   

+

+

Molster [3]

 

+

+

+

+

   

+

Holtkamp [40]

         

Janssens [54]

  

+

+

  

+

 

+

Chokoshvili [10]

        

+

Mathijssen [43]

     

+

   

Van der Hout [45]

 

+

 

+

  

+

  

Kraft [27]

 

+

 

+

+

  

+

+

Beauchamp [26]

        

+

Nijmeijer [44]

+

+

    

+

 

+

Matar [51]

 

+

+

+

    

+

Matar [52]

 

+

+

+

+

  

+

+

Delatycki [21]

   

+

+

+

  

+

Dive [13]

 

+

 

+

    

+

Rowe [36]

 

+

 

+

   

+

+

Cornel [47]

   

+

+

  

+

+

Conijn [46]

+

 

+

     

+

Van Dijke [48]

        

+

Dive [13]

 

+

 

+

   

+

+

Morberg Jamterud [49]

 

+

      

+

Bonneau [58]

   

+

+

   Â