Table 1 Health-care utilization and demographic characteristics, National Inpatient Stay (NIS).

From: Can you hear us now? The impact of health-care utilization by rare disease patients in the United States

 

Rare disease %

Common condition %

P value

n

11,289,703

24,378,608

 

Age (years)

58.3

44.7

<0.0001

Neonate at admission

0.7

0.9

<0.0001

Sex

<0.0001

 Female

51.3

59.2

 

 Male

48.7

51.3

 

Race and ethnicity

<0.0001

 White

68.2

64.1

 

 Black

15.7

15.0

 

 Hispanic

9.8

13.4

 

 Asian or Pacific Islander

2.8

3.2

 

 Native American

0.6

0.7

 

 Other

3.0

3.6

 

Payer

<0.0001

 Private

23.8

33.0

 

 Medicare

53.7

33.1

 

 Medicaid

16.9

26.0

 

 Self-pay

2.8

4.4

 

 No charge

0.3

0.3

 

 Other

2.6

3.2

 

Location

<0.0001

 Large metro (central)

29.6

30.3

 

 Large metro (fringe)

24.8

23.6

 

 Medium metro

20.8

20.7

 

 Small metro

9.3

9.2

 

 Micropolitan

9.0

9.2

 

 Nonmetro, nonmicropolitan

6.6

7.0

 

Income quartile by ZIP code ($)

<0.0001

 1–42,999

29.9

31.1

 

 43,000–53,999

25.2

25.5

 

 54,000–70,999

24.1

23.8

 

 71,000+

20.8

19.6

 

Discharge disposition

<0.0001

 Routine

56.4

75.0

 

 Transfer to short-term hospital

2.7

1.6

 

 Transfer to other facility

20.0

11.1

 

 Home health care

16.0

10.0

 

 Left against medical advice

1.1

1.3

 

 Died

3.9

1.0

 

Elective

<0.0001

 Elective admission

17.6

23.2

 

 Nonelective admission

82.4

76.8

 

Procedures per discharge (number)

<0.0001

 0

38.2

38.8

 

 1–5

52.7

57.7

 

 6–10

7.3

3.1

 

 11–15

1.8

0.4

 

Transfer in

<0.0001

 Not transferred in/newborn

90.2

93.5

 

 From acute care hospital

7.1

4.7

 

 From another type of health facility

2.8

1.8

 

Transfer out

<0.0001

 Not a transfer

77.3

87.3

 

 To acute care hospital

2.7

1.6

 

 To another type of health facility

20.0

11.1

 

Hospital division

<0.0001

 New England

5.1

4.4

 

 Middle Atlantic

14.0

13.8

 

 East North Central

15.9

15.0

 

 West North Central

6.8

7.0

 

 South Atlantic

21.1

20.4

 

 East South Central

6.6

6.9

 

 West South Central

10.7

12.4

 

 Mountain

6.1

6.3

 

 Pacific

13.5

13.8

 

Missing values not displayed

   
  1. Demographic characteristics, NIS, weighted estimate.