Table 1 Principles for engaging in ethical research with Indigenous people
From: A framework for enhancing ethical genomic research with Indigenous communities
Key considerations | Significance/s | Example/s |
|---|---|---|
1. Understand tribal sovereignty and research regulation Research oversight structures such as tribal IRBs, the IHS IRB, and tribal council research policies and regulations are important to consider in Indigenous communities. | Tribal sovereignty, respect | Multiple IRB review43, NCAI Resource Guide, CRCAIH52, NIH Tribal Health Research Office |
2. Engage and collaborate with the tribal community Involve the community in all aspects of the research process from the initial research question development to the final dissemination of results. | Reciprocity | CBPR45, Bidirectional knowledge48 |
3. Build cultural competency Listen and learn from the community about their cultural perspectives. | Respect for persons, traditional knowledge, community values | Cultural competency traininga |
4. Improve transparency of research practices Make research goals and processes clear and understandable through frequent communication. | Beneficence | Bidirectional knowledge48 |
5. Build tribal research capacity Train and support community members in the research process. | Tribal sovereignty, beneficence, equity | CRCAIH52, NIH Tribal Health Research Office |
6. Disseminate findings in a community-accessible format Collaborate with community partners to use culturally appropriate methods of disseminating and applying the findings. | Beneficence, respect for persons, equity | Digital storytelling63, RED Talksb |
