Table 1 Participant demographic data and self-reported symptoms for the first 200 participants
From: AccessPD as a next generation registry to accelerate Parkinson’s disease research
AccessPD as a next generation registry to accelerate Parkinson’s disease research | ||
|---|---|---|
Characteristics | Participants (n = 200) | |
Average age (years) at diagnosis (95% CI) | 65.6 (64.2, 67.0) | |
Average years since diagnosis (95% CI) | 5.2 (4.5, 5.9) | |
Average age (years) at enrollment (95% CI) | 70.8 (69.5, 72.1) | |
Age at enrollment (years) | <40 | 1 (0.5%) |
40–49 | 5 (2.5%) | |
50–59 | 13 (6.5%) | |
60–69 | 56 (28.0%) | |
70–79 | 97 (48.5%) | |
>80 | 28 (14.0%) | |
Sex at birth, n (%) | ||
Female | 86 (43.0%) | |
Male | 114 (57.0%) | |
Self-reported ethnicity, n (%) | ||
White (including English, Welsh, Scottish, Northern Irish or Irish and any other White background) | 189 (94.5%) | |
Non-white (including Asian, black, mixed, other, and prefer not to say) | 11 (5.5%) | |
Index of Multiple Deprivationa of the postcode areas where the participants live | ||
Index of Multiple Deprivation Decile (from most deprived to least deprived) | Number of postcode areas, n (%) | |
1–2 | 24 (12.4%) | |
3–4 | 35 (18.1%) | |
5–6 | 17 (8.8%) | |
7–8 | 44 (22.8%) | |
9–10 | 73 (37.8%) | |
Most common current symptoms, n (%) | ||
Tremor | 156 (78.0%) | |
Muscle stiffness | 129 (64.5%) | |
Fatigue | 120 (60.0%) | |
Slowness of movement | 117 (58.5%) | |
Problem sleeping | 98 (49.0%) | |
Problem walking | 90 (45.0%) | |
Family History of PD, n (%) | ||
Yes | 38 (19.0%) | |
No | 162 (81.0%) | |
Impact of PD on movement, n (%) | ||
No impact of motor symptoms | 27 (13.5%) | |
Symptoms affect one side of the body | 73 (36.5%) | |
Symptoms affect both sides of the body | 23 (11.5%) | |
Symptoms affect both sides of the body and walking/balance is impaired | 55 (27.5%) | |
Assistance in daily activities needed | 22 (11.0%) | |
History of Deep Brain Stimulation, n (%) | ||
Yes | 2 (1.0%) | |
No | 198 (99.0%) | |
