Table 1 Demographic characteristics and results of the high-interest questions (HIQ) and all questionnaires of online survey participants recruited by HeBA Kassel
HeBA Kassel, N = 8001 | Characteristic | Count or mean | Percentage or SD |
|---|---|---|---|
Sex | Men | 3247 | 41% |
Women | 4750 | 59% | |
Diverse | 4 | 0.05% | |
Age | Age (in years) | 64.65 | 7.86 |
Educational Duration | Years of Education | 15.25 | 4.61 |
Educational Status | Education -Primary | 703 | 9% |
Education -Secondary | 898 | 11% | |
Education -Further/A-Level | 3283 | 41% | |
Education -Higher education | 3025 | 38% | |
Living Situation | Living alone | 1565 | 20% |
Living with partner | 5982 | 75% | |
Living with other family members | 1653 | 20% | |
Living with professional aid | 27 | 0.34% | |
Calculated probability for prodromal PD according to MDS criteria11 | <1% | 4223 | 53% |
1-5% | 2976 | 37% | |
5-15% | 557 | 7% | |
15-30% | 142 | 2% | |
>30% | 97 | 1% | |
HIQ Family history of PD Does anyone in your family have Parkinson’s (a blood relative)? | PD in Family: No | 6538 | 82% |
PD in Family: Yes | 985 | 12% | |
PD in Family: Unknown | 478 | 6% | |
HIQ Family history of AD Does anyone in your family have Alzheimer’s disease (a blood relative)? | AD in Family: No | 5929 | 74% |
AD in Family: Yes | 1171 | 15% | |
AD in Family: Unknown | 901 | 11% | |
HIQ Subjective hyposmia Do you have any problems with your sense of smell? (Please consider ONLY long-term difficulties, NOT temporary problems, such as during a viral infection.) | No | 7348 | 92% |
Yes | 653 | 8% | |
HIQ Dream enactment behavior Do you sometimes have very vivid dreams OR have you ever been told, or suspected yourself, that you seem to “act out your dreams” while asleep (for example, punching, flailing your arms in the air, making running movements, etc.)? | No | 6805 | 85% |
Yes | 1196 | 15% | |
HIQ Subjective memory impairment Do you think your memory is bad or even very bad as compared to your peers? | No | 6852 | 86% |
Yes | 1149 | 14% | |
Schechtman’s Physical Activity Single Question (PASQ) Do you currently participate in any regular activity or program (either on your own or in a formal class) designed to improve or maintain your physical fitness? | Unanswered | 167 | 2% |
No | 2548 | 32% | |
Yes | 5286 | 66% | |
Geriatric Depression Scale (GDS) | Negative (total score <5) | 6764 | 85% |
Positive (total score ≥5) | 1237 | 15% | |
Non-Motor Symptoms Questionnaire (NMSQ) | Mean total score | 4.85 | 3.83 |
MDS-UPDRS Part IB (non-motor aspects of daily living) | Mean total score | 4.51 | 3.67 |
MDS-UPDRS Part II (motor aspects of daily living) | Mean total score | 1.52 | 3.02 |
Penn Parkinson’s Daily Activities Questionnaire-15 (PDAQ-15) Total Score | 37 - 43 | 16 | 0.2% |
<37 (cutoff dementia) | 20 | 0.3% | |
>43 (cutoff non-demented/MCI): | 7728 | 97% | |
Unanswered | 237 | 3% |
