Table 3 Themes and Sub-themes.

From: “I’m living in a ‘no’ world now…”- A qualitative study of the widespread impact of living with chronic breathlessness, and experiences of identification and assessment of this symptom in an older, frail community-based population

Qualitative Theme

Sub-themes

Theoretical frameworks and their domains (if applicable)

Theme 1: Widespread Negative Impact of Chronic Breathlessness

Total Dyspnea

• Physical

• Psychological

• Social

Breathing Space

• Help-seeking behaviours (in crisis only)

Theme 2: Barriers to Optimal Health-Seeking Behaviour and Identification of Chronic Breathlessness

• Experiences of identification/assessment

• Experiences of barriers to effective identification of chronic breathlessness

• Use of ‘chronic breathlessness’ terminology

Breathing Space

• Clinicians responsiveness to breathlessness (to breathlessness and underlying disease)

• Clinicians responsiveness to breathlessness (to underlying disease only)

• Help-seeking behaviours (for persistent breathlessness)

• Help-seeking behaviours (in crisis only)

• Patients’ coping (disengaged)

Theme 3: Variations in Clinical Management of Chronic Breathlessness

• Variations in treatment and management

• Examples of good practice

Breathing Space

• Clinicians responsiveness to breathlessness (to underlying disease only)

• Clinicians responsiveness to breathlessness (to breathlessness and underlying disease)

• Patients’ coping (engaged)

Total Dyspnea

• Existential

Theme 4: The Need for Education and Information about Chronic Breathlessness

• Clinicians knowledge and expectations of care regarding chronic breathlessness

• Patient’s knowledge and expectations of care regarding chronic breathlessness

Breathing Space

• Clinicians responsiveness to breathlessness (to breathlessness and underlying disease)

• Clinicians responsiveness to breathlessness (to underlying disease only)

• Patients’ coping (disengaged)