Table 1 Overview of included German population-based observational studies (n = 16).

From: Chronic disease outcome metadata from German observational studies – public availability and FAIR principles

Study name

Study design

Sample size

Recruitment years

Age at recruitment

CARLA (Cardiovascular Disease, Living and Ageing in Halle)

Cohort

1,779

2002–2006

45–83 y

DEGS1a (German Health Interview and Examination Survey for Adults)

Mixed (cross-sectional and cohort)

8,152

2008–2011

18–79 y

DONALD (Dortmund Nutritional and Anthropometric Longitudinally Designed Study)

(Open) cohort

~2,300b

since 1985 (ongoing)

3 mo

EPIC-Heidelberg (European Prospective Investigation into Cancer and Nutrition – Heidelberg cohort)

Cohort

25,540

1994–1998

35–65 y

EPIC-Potsdam (European Prospective Investigation into Cancer and Nutrition – Potsdam cohort)

Cohort

27,548

1994–1998

35–65 y

GEDA – multiple studies (2009–2021) (German Health Update)

Cross-sectional

21,262

2009

18–79 + y

22,050

2010

19,294

2012

24,016

2014–2015

GHS (Gutenberg Health Study)

Cohort

15,010

2007–2012

35–74 y

GNHIES98 (BGS98) (German National Health Interview and Examination Survey 1998)

Cross-sectional

7,124

1997–1999

18–79 y

HCHS (Hamburg City Health Study)

Cohort

~45,000b

since 2015 (ongoing)

45–74 y

HNRS (Heinz Nixdorf Recall Study)

Cohort

4,814

2000–2003

45–75 y

IDEFICS/I.Family (Identification and prevention of dietary- and lifestyle-induced health effects in children and infants/Determinants of eating behaviour in European children, adolescents and their parents)

Cohort

16,228 (IDEFICS)

2007–2008

2–10 y

9,617 (I.Family)

KORA (Cooperative Health Research in the Region of Augsburg)

Cohort

S1: 4,022

S1: 1984–1985

S1: 25–64 y;

S2: 4,940

S2: 1989–1990

S3: 4,856

S3: 1994–1995

S4: 4,261

S4: 1999–2001

S2-4: 25–74 y

lidA (German Cohort Study on Work, Age, Health and Work Participation)

Cohort

6,585

2011

46 and 52 y

LIFE-Adult (Leipzig Research Centre for Civilization Diseases – Adult study)

Cohort

10,000

2011–2014

18–80 y

NAKO (German National Cohort; GNC/NAKO)

Cohort

>205,000c

2014–2019

20–69 y

SHIP/SHIP Trend (Study of Health in Pomerania)

Cohort

4,308/ 4,420

1997–2001/ 2008–2012

20–79 y

  1. mo, months; y, years.
  2. aGNHIES98 participants were invited again for DEGS1.
  3. bOngoing recruitment.
  4. cExact number of participants not yet published.