Table 3 Sources of published outcome metadataa.

From: Chronic disease outcome metadata from German observational studies – public availability and FAIR principles

1. Scientific publications

Descriptive publications (e.g., cohort profile/data resource profile, protocol describing study objectives and design) and analytic publications (i.e., focusing on specific research question(s)) in scientific journals.

2. Study websites

Descriptions of the study and procedures.

3. Study/trial registries

Descriptions of the study (e.g., study/trial registries like clinicaltrials.gov, metadata repositories).

4. Data documents

Study reports, data dictionaries, lists of variables, questionnaires, etc. Data documents are often available through (meta-)data access infrastructure (i.e., web portals).

  1. aAdapted from previously defined sources contributing to (meta-)data discoverability (McMahon 2017, https://discovery.ucl.ac.uk/id/eprint/10025205)25
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