Table 1 Patients’ clinical characteristics, treatment data and outcome measures.
Pts | Age at last follow up (years) | Sex | Disease duration at last follow up | First line treatment (FLT) | FLT duration | IVIG duration | Dose SCIg (gr/week) | SCIg duration | ONLS | MRC s.s. | LQI | |||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
T0 | T1 | T0 | T1 | T0 | T1 | |||||||||
1 | 47 | M | 19 years | prednisone | 12 years | 1 year | 20 | 6 years | 2 | 2 | 78 | 78 | 66 | 90 |
2 | 77 | M | 14 years | prednisone | 7 years | 2 years | 16 | 5 years | 5 | 5 | 44 | 46 | 44 | 67 |
3 | 58 | F | 6 years | IVIG | 4.5 years | 4.5 years | 30 | 5 years | 5 | 5 | 59 | 62 | 59 | 81 |
4 | 54 | F | 12 years | predn/AZT | 1 year | 4 years | 12 | 6 years (suspended) | 4 | 4 | 64 | 64 | 85 | 86 |
5 | 48 | M | 12 years | AZT | 4 years | 4 years | 20 | 7 years | 3 | 2 | 66 | 66 | 75 | 99 |
6 | 79 | M | 7 years | IVIG | 1 year | 1 year | 20 | 6 years | 6 | 3 | 70 | 80 | 85 | 98 |
7 | 60 | M | 8 years | predn/AZT | 1 year | 0.5 year | 18 | 7 years | 2 | 1 | 68 | 80 | 82 | 90 |
8 | 74 | F | 7 years | IVIG | 0.5 year | 0.5 year | 16 | 6 years | 3 | 1 | 78 | 80 | 82 | 98 |
9 | 72 | F | 6 years | prednisone | 1 year | 0.5 year | 12 | 5 years | 7 | 6 | 69 | 73 | 62 | 78 |
10 | 60 | F | 17 years | prednisone | 17 years (ongoing) | 11 years | 9.6 | 2 years (suspended) | 4 | 6 | 68 | 60 | 62 | 70 |
11 | 68 | M | 6 years | prednisone | 0.5 year | 0.5 year | 30 | 3.5 years | 5 | 5 | 66 | 66 | 60 | 89 |
12 | 56 | M | 12 years | prednisone | 12 years (ongoing) | 2 years | 30 | 4.5 years | 2 | 2 | 75 | 75 | 63 | 92 |
13 | 27 | M | 12 years | IVIG | 8 years | 8 years | 12.8 | 4 years | 2 | 0 | 71 | 80 | 58 | 96 |
14 | 60 | M | 7 years | prednisone | 0.5 year | 0.5 year | 15 | 3 years | 2 | 0 | 78 | 80 | 75 | 100 |
15 | 64 | F | 13 years | predn/AZT | 4 years | 4 years | 20 | 3 years | 4 | 3 | 74 | 74 | 56 | 84 |
16 | 55 | F | 12 years | predn/AZT | 0.5 year | 4.5 years | 12.8 | 7 years | 3 | 3 | 76 | 76 | 78 | 95 |
17 | 47 | M | 14 years | prednisone | 12 years (ongoing) | 1 year | 20 | 2 year | 3 | 2 | 78 | 78 | 64 | 90 |