Table 4 Details of disclosed information.

From: Survey on experiences and attitudes of parents toward disclosing information to children with genetic syndromes and their siblings in Japan

Items

 

Children with genetic condition (n = 67)

Siblingsa (n = 50)

%

n

%

n

1

Diagnosis

63

42

76

38

2

Symptoms

73

49

92

46

3

Cause of genetic condition

16

11

28

14

4

Management

49

33

50

25

5

Heredity

7

5

36

18

6

Reason for going to the hospital

57

38

54

27

7

Other (if possible, please explain in detail)

9

6

2

1

  1. Note all items were multiple-choice answers.
  2. aThis number reflects the number of respondents who answered that they had disclosed information to the siblings of affected children in questionnaire I.
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