Table 5 Important points when disclosing.

From: Survey on experiences and attitudes of parents toward disclosing information to children with genetic syndromes and their siblings in Japan

Items

 

Children with genetic condition (n = 67)

Siblingsa (n = 50)

%

n

%

n

1

Be honest

36

24

56

28

2

Keep it simple

49

33

44

22

3

Try to explain in a way that is easy to understand

67

45

66

33

4

Be direct; use appropriate terms

3

2

6

3

5

Do not treat it as an abnormality

27

18

36

18

6

Try to be relieved

48

32

38

19

7

Treat it as "no big deal"

25

17

24

12

8

Other (if possible, please explain in detail)

15

10

8

4

  1. Note all items were multiple choice answers.
  2. aThis number reflects the number of respondents who answered that they had disclosed information to the siblings of affected children in questionnaire I.
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