Table 5 Associations between baseline (T1) characteristics and worsened health status at 5 years (T2): the deceased persons were considered as part of the worsened cases: multivariate analysis.

		Model 1*		Model 2*
		OR (95%CI)	p	OR (95%CI)	p
		Global severity ~
Aetiology lesion time	Antenatal (/Others)	2.11 (1.33–3.32)	0.001
Aetiology nature	Progressive (/Others)			2.34 (1.25–4.42)	0.008
Care management modalities	Spec. rehab. Centres (/Others	2.49 (1.59–3.92)	< 0.001	2.56 (1.66–3.95)	< 0.001
		Abilities severity ~
Aetiology lesion time	Antenatal (/Others)	1.69 (1.06–2.68)	0.026
Care management modalities	Spec. rehab. Centres (/Others)	5.73 (3.44–9.56)	< 0.001
Profound intellectual impairment	Yes (/No)	6.44 (2.95–14.04)	< 0.001
Number of devices		0.98 (0.67–1.45)	0.710
Number of medications		1.10 (1.02–1.19)	0.013
		Comorbidities severity ~
Behavioural disorders	Yes (/No)	0.48 (0.25–0.94)	0.032

Bold values; p < 0.05.
T1: 2015-16 evaluation ; T2: 2020-21 evaluation.
~ from the PSS (Polyhandicap Severity Scale) scores; T2 score minus T1 score = D, if D < 0 non-worsened, if D > = 0 or deceased worsened.
* Model 1 included aetiology lesion time; Model 2 included aetiology nature.
OR (95%CI): odd ratio (95% confidence interval); p:p-value.
Spec. rehab. centres: specialized rehabilitation centres.
Behavioural disorders: intermittent screaming and/or agitation and/or stereotypies and/or intermittent crying and/or self-aggression and/or hetero-aggression.
Devices: invasive mechanical ventilation, noninvasive mechanical ventilation, tracheostomy, nasogastric tube, gastrostomy, permanent urinary probe, cerebrospinal fluid derivation, and central venous catheter.
Medications: laxatives, anti-convulsants, antalgics, psychotropics, antispastics, antidystonics, antibiotics, osteoporosis prevention, iron supplementation.

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