Table 1 Crowdsourcing projects for COVID-19 in oncology and medicine

CCC19

Oncology

To collect information about patients with cancer who have COVID-19, with the intent of using and disseminating information to clinicians and improve outcomes

International

https://ccc19.org/

UK Coronavirus cancer-monitoring project

Oncology

To collect information about prevalence of COVID-19 with associated anonymized data about site of disease and mortality

UK

https://ukcoronaviruscancermonitoring.com/

TERAVOLT

Oncology

A global consortium designed to gather information on patients with thoracic cancer who have COVID-19, regardless of therapies administered

International

N/A; participants join by e-mail

ASH RC COVID-19 Registry for Hematologic Malignancy

Hematology–oncology

To capture data on people who test positive for COVID-19 and have been or are currently being treated for hematological malignancies and report near real-time observational data; summaries will be reported for clinicians

International

https://www.ashresearchcollaborative.org/covid-19-registry

ASCO Registry

Oncology

To capture COVID-19 treatments and outcomes as well as cancer treatment and outcomes, including long-term effects for those who recover from COVID-19

USA

https://www.asco.org/asco-coronavirus-information/coronavirus-registry

SECURE-SCD Registry

Hematology

To report on outcomes of COVID-19 in the population of patients with sickle-cell disease

International

https://covidsicklecell.org/

COVID-19 Global Rheumatology Alliance

Rheumatology

To guide rheumatology clinicians in assessing and treating patients with rheumatological disease and in evaluating the risk of infection in patients on immunosuppression

International

https://rheum-covid.org/

SECURE-Cirrhosis Registry

Hepatology

To collect data on COVID-19 in patients with chronic liver disease (with or without cirrhosis) and after liver transplantation, regardless of the severity of COVID-19 (including asymptomatic patients detected through public health screening)

North or South America, or China, Japan and Korea

https://covidcirrhosis.web.unc.edu/

COVID-HEP Registry

Hepatology

To collect data on patients with liver disease or liver transplants who develop laboratory-confirmed COVID-19

European Union

https://www.covid-hep.net/

SECURE-IBD Registry

Gastroenterology

To capture the natural history and outcomes of children and adults with IBD in the context of COVID-19

International

https://covidibd.org/

COVID-19 in PID

Immunology

N/A

N/A

https://www.surveymonkey.com/r/67RBPNZ?