Abstract
Objective:
To create the International Spinal Cord Injury (SCI) Female Sexual and Reproductive Function Basic Data Set within the International SCI Data Sets.
Setting:
An international working group.
Methods:
The draft of the data set was developed by an international working group consisting of members appointed by the International Spinal Cord Society (ISCoS), the American Spinal Injury Association (ASIA), and a representative from the Executive Committee of the International SCI Standards and Data Sets. The data set was developed in an iterative process with review and comments by members of the Executive Committee of the International SCI Standards and Data Sets, ISCoS Scientific Committee, ASIA Board and the ISCoS Council, as well as all interested organizations and individuals. In addition, the data set was posted for 2 months at the ISCoS and ASIA websites for comments. ISCoS and ASIA approved the final version of the data set. To make the data set uniform, each variable and each response category within each variable have been specifically designed to promote the collection and reporting of comparable minimal data.
Results:
Variables included in the International SCI Female Sexual and Reproductive Function Basic Data Set are as follows: date of data collection, interest in discussing sexual issues, sexual issues unrelated to spinal cord lesion, sexual dysfunction related to spinal cord lesion, psychogenic genital arousal, reflex genital arousal, orgasmic function and menstruation. Complete instruction for data collection, data sheet and training cases are available at the websites of ISCoS (http://www.iscos.org.uk) and ASIA (http://www.asia-spinalinjury.org).
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Acknowledgements
We are thankful for the comments and suggestions received from Michael de Vivo, Susan Charlifue and Lawrence Vogel.
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Appendix
Appendix
International SCI femanle sexual and reproductive function basic data set—from (version 1.0)
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Alexander, M., Biering-Sørensen, F., Elliott, S. et al. International Spinal Cord Injury Female Sexual and Reproductive Function Basic Data Set. Spinal Cord 49, 787–790 (2011). https://doi.org/10.1038/sc.2011.7
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DOI: https://doi.org/10.1038/sc.2011.7
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