Advanced search

Filter By:

Journal Check one or more journals to show results from those journals only.

Choose more journals

Article type Check one or more article types to show results from those article types only.
Subject Check one or more subjects to show results from those subjects only.
Date Choose a date option to show results from those dates only.

Custom date range

Clear all filters
Sort by:
Showing 1–7 of 7 results
Advanced filters: Author: Maui Hudson Clear advanced filters

  • Achieving a diagnosis for Indigenous people living with a rare, often genetic, disease is crucial for equitable healthcare. The International Rare Disease Research Consortium convened a global Task Force to bridge the gap in diagnosing Indigenous rare diseases, and identify solutions to tackle the health inequity faced by Indigenous people.

    • Gareth Baynam
    • Daria Julkowska
    • Barend Christiaan Vorster
    Comments & Opinion
    Nature Genetics
    Volume: 56, P: 189-193

  • Indigenous Peoples are increasingly being sought out for research partnerships that incorporate Indigenous Knowledges into ecology research. In such research partnerships, it is essential that Indigenous data are cared for ethically and responsibly. Here we outline how the ‘CARE Principles for Indigenous Data Governance’ can sow community ethics into disciplines that are inundated with extractive helicopter research practices, and we provide standardized practices for evolving data and research landscapes.

    • Lydia Jennings
    • Talia Anderson
    • Stephanie Russo Carroll
    Comments & Opinion
    Nature Ecology & Evolution
    Volume: 7, P: 1547-1551

  • In this Perspective article, the authors discuss how Indigenous Peoples' desires for greater involvement and oversight when participating in genomic research projects can be balanced against calls for unrestricted data access. They provide practical recommendations for the handling and sharing of Indigenous genomic data, with the aim of achieving mutual benefit for the research community and participating Indigenous communities.

    • Maui Hudson
    • Nanibaa’ A. Garrison
    • Stephanie Russo Carroll
    Reviews
    Nature Reviews Genetics
    Volume: 21, P: 377-384

  • A comment article summarizing a range of research activities that contribute to understanding evolving Māori perspectives on Gene Editing and how they might contribute to future regulation.

    • Amanda Clark
    • Phillip Wilcox
    • Maui Hudson
    Comments & OpinionOpen Access
    Communications Biology
    Volume: 7, P: 1-7

  • As big data, open data, and open science advance to increase access to complex and large datasets for innovation, discovery, and decision-making, Indigenous Peoples’ rights to control and access their data within these data environments remain limited. Operationalizing the FAIR Principles for scientific data with the CARE Principles for Indigenous Data Governance enhances machine actionability and brings people and purpose to the fore to resolve Indigenous Peoples’ rights to and interests in their data across the data lifecycle.

    • Stephanie Russo Carroll
    • Edit Herczog
    • Shelley Stall
    Comments & OpinionOpen Access
    Scientific Data
    Volume: 8, P: 1-6