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Patient involvement in nephrology research

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The involvement of patients with lived experience of kidney disease in nephrology research can strengthen the relevance and uptake of evidence to achieve better outcomes. The past two decades have seen increased efforts to involve patients and caregivers, particularly in research priority setting, study design and dissemination. However, further efforts are needed to improve the transparency and diversity of patient involvement in research.

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Positionality statement

N.S.-R. has lived experience of chronic kidney disease, peritoneal dialysis and transplantation, and is a clinical physiotherapist and a research fellow at The University of Sydney.

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Correspondence to Nicole Scholes-Robertson.

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The authors declare no competing interests.

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Scholes-Robertson, N., Jaure, A. Patient involvement in nephrology research. Nat Rev Nephrol 21, 718–719 (2025). https://doi.org/10.1038/s41581-025-00987-6

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