Abstract
Study design:
A formal decision-making and consensus process integrating evidence gathered from preparatory studies was followed.
Objectives:
The aim of this study was to report on the results of the consensus process to develop the first version of a Comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set and a Brief ICF Core Set for individuals with spinal cord injury (SCI) in the early post-acute context.
Setting:
The consensus conference took place in Switzerland. Preparatory studies were performed worldwide.
Methods:
Preparatory studies included an expert survey, a systematic literature review, a qualitative study and empirical data collection involving people with SCI. ICF categories were identified in a formal consensus process by international experts from different backgrounds.
Results:
The preparatory studies identified a set of 531 ICF categories at the second, third and fourth levels. From 30 countries, 33 SCI experts attended the consensus conference (11 physicians, 6 physical therapists, 5 occupational therapists, 6 nurses, 3 psychologists and 2 social workers). Altogether 162 second-, third- or fourth-level categories were included in the Comprehensive ICF Core Sets with 63 categories from the component Body Functions, 14 from Body Structures, 53 from Activities and Participation and 32 from Environmental Factors. The Brief Core Set included a total of 25 second-level categories with 8 on Body Functions, 3 on Body Structures, 9 on Activities and Participation, and 5 on Environmental Factors.
Conclusion:
A formal consensus process-integrating evidence and expert opinion based on the ICF led to the ICF Core Sets for individuals with SCI in the early post-acute context. Further validation of this first version is needed.
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Acknowledgements
This project was funded by Swiss Paraplegic Research, Nottwil, Switzerland. We are grateful for the contributions made by the following experts attending the consensus conference: Lindsay Alford, Lester Butt, Sam S Chan, Guido Deckstein, Wagih El-Masry, Fazlul Hoque, Georgina Ilosvai, Alvydas Juocevicius, Ann-Katrin Karlsson, Shinsuke Katoh, Sanna Koskinen, Klaus Krogh, Jianan Li, Kwan-Hwa Lin, Ana Cristina Mancussi e Faro, Charles Manise, Karen Marshall, Tlhaloganyo Mbalambi, Yuri Moustafaev, Dominick Michael Mshanga, Diana Nix, Ali Otom, Inder Perkash, Kiley Pershouse, Manoj Ranabhat, Gail Richmond, Lalita Thambi, Ha Van Than, Jose M Tormos Munoz, Pat Tracy, Lizelle van der Vyver, Renata Vaughan and Tamara Zamparo. Our special thanks to Monika Scheuringer who was the international coordinator of the preparatory studies for her extraordinary commitment. We thank the working group assistants Jennifer Dunn, Helga Lechner, Hansjörg Lüthi, Joanne Nunnerley and Manuel Zwecker for their support. We also thank Silvia Neubert, Heinrich Gall, Sven Becker, Andreas Leib, Elisabeth Linseisen and Christine Boldt for their invaluable support during the conference.
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Kirchberger, I., Cieza, A., Biering-Sørensen, F. et al. ICF Core Sets for individuals with spinal cord injury in the early post-acute context. Spinal Cord 48, 297–304 (2010). https://doi.org/10.1038/sc.2009.128
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DOI: https://doi.org/10.1038/sc.2009.128
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