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Showing 1–6 of 6 results
Advanced filters: Author: Joseph M. Yracheta Clear advanced filters

  • We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary approach to data management by building space for researchers to engage with data from Indigenous groups under rigorous Tribal Nation governance and by prioritizing community data-sharing interests.

    • Matthew Z. Anderson
    • Krystal S. Tsosie
    • Joseph M. Yracheta
    Comments & Opinion
    Nature Genetics
    Volume: 57, P: 2614-2619

  • Bahmani, Cha, Alavi, Dixit et al. evaluate an AI-facilitated precision medicine learning platform they built, Stanford Data Ocean. The platform, which provided 3594 costfree certification accesses across 93 countries, demonstrates positive training outcomes across bioinformatics topics for low and middle income learners.

    • Amir Bahmani
    • Kexin Cha
    • Michael Snyder
    ResearchOpen Access
    Communications Medicine
    Volume: 5, P: 1-15

  • Genomic studies often rely on individual-based consent approaches for tribal members residing outside of their communities. Tsosie et al. argue that this consent model fails to acknowledge the risks to small groups such as tribes, which can implicate the community as a whole.

    • Krystal S. Tsosie
    • Joseph M. Yracheta
    • Donna Dickenson
    Comments & Opinion
    Nature Reviews Genetics
    Volume: 20, P: 497-498

  • In this Perspective article, the authors discuss how Indigenous Peoples' desires for greater involvement and oversight when participating in genomic research projects can be balanced against calls for unrestricted data access. They provide practical recommendations for the handling and sharing of Indigenous genomic data, with the aim of achieving mutual benefit for the research community and participating Indigenous communities.

    • Maui Hudson
    • Nanibaa’ A. Garrison
    • Stephanie Russo Carroll
    Reviews
    Nature Reviews Genetics
    Volume: 21, P: 377-384

  • Indigenous peoples are still underrepresented in genetic research. Here, the authors propose an ethical framework consisting of six major principles that encourages researchers and Indigenous communities to build strong and equal partnerships to increase trust, engagement and diversity in genomic studies.

    • Katrina G. Claw
    • Matthew Z. Anderson
    • Joseph M. Yracheta
    ReviewsOpen Access
    Nature Communications
    Volume: 9, P: 1-7