Abstract
Study design: Survey.
Objective: To measure the utilization of upper extremity reconstructive surgery and the clinicians' perceptions of the outcomes provided for persons with tetraplegia across the Model Spinal Cord (SCI) Injury Systems.
Setting: Model SCI Systems.
Methods: Participants: A clinician from each of the Model Centers. Main outcome measure: A mailed survey eliciting responses with respect to: (1) utilization of upper extremity reconstructive procedures and (2) the clinicians' perceived outcomes of these procedures.
Results: In all, 76% responded positively about the availability and appropriateness of upper extremity surgical reconstruction at their center. Of the respondents, 75% felt that surgery recipients were generally satisfied with their surgeries, 80% felt that the surgery made a positive impact on recipients' lives, 81% felt that recipients showed increased independence, and 70% reported a positive impact on recipients' occupation. In all, 93% felt insurance companies should pay for the procedures. Compared to the satisfaction of surgery recipients using a similar instrument, clinicians anticipated slightly greater improvements in all areas except occupation.
Conclusions: There is a positive perception of the benefits of reconstructive surgery for tetraplegia; however, procedures are not routinely offered at all centers. The primary reasons reported for this include the misconception that insurance does not remit payment, that a surgeon is not available, and that surgical candidates are referred to another center.
Sponsorship: Support was provided by the United States Department of Education, National Institute on Disability and Rehabilitation Research. Award #H133N50018, Rehabilitation Research and Development Center of Excellence in Functional Electrical Stimulation Department of Veterans Affairs.
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Acknowledgements
We thank Mary Jo Roach Ph.D., Kevin Kilgore Ph.D., William Memberg M.S., and Ronald Hart M.S. for their assistance in the statistical analysis of data and critical review of the manuscript. We additionally thank the Model Spinal Cord Injury Systems for participating in this study. This study was funded by the United States Department of Education, Office of Special Education and Rehabilitation Services, National Institute on Disability and Rehabilitation Research. Part of this work was presented at the American Spinal Injury Association Annual Meeting held on April 14–16, 2000 in Chicago, IL, USA.
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Bryden, A., Wuolle, K., Murray, P. et al. Perceived outcomes and utilization of upper extremity surgical reconstruction in individuals with tetraplegia at model spinal cord injury systems. Spinal Cord 42, 169–176 (2004). https://doi.org/10.1038/sj.sc.3101579
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