98 PSYCHOLOGICAL AND SOCIAL FINDINGS IN. ADOLESCENTS WITH PHENYLKETONURIA (PKU)

Abstract

In a retrospective study the psycho-social context of 34 early treated patients with PKU (mean age 14.6 y) and their parents were evaluated.

In the CFT 20 the patients reached a mean IQ of 93.6 which is significantly below the IQ of their mothers (98.2), that of their fathers (105.4) (p<0.05) and that of the normal population (100, p<0.01). In the MBI (personality inventory) the social context significantly differed from the normal population as the patients described “more support by parents, less autonomy, lower evaluation of their situation in school, less achievement motivation, less frustration tolerance, lower self-confidence and less health” (p<0.05). No significant differences regarding the scales “interpersonal behaviour, working discipline and creativity” were found.

The dietetic knowledge of most patients was poor and 55 % of them had poor dietary control despite regular instructions by doctors and dietitions. 93 % would prefer to discontinue the dietary regimen.

In view of these results and the demand to continue the diet during adolescence, systematic teaching programs must be established for a better coping with PKU.

Log in or create a free account to read this content

Gain free access to this article, as well as selected content from this journal and more on nature.com

Access through your institution

or

Sign in or create an account

Continue with Google

Continue with ORCiD