Abstract
Background
In developing countries, obtaining reliable prevalence rates for children with special health care needs (CSHCN) is challenging. One of the tools used to identify CSHCN is the CSHCN Screener (not available in Arabic). The aim is to test the feasibility of using an Arabic version of CSHCN screener in identifying CSHCN in the Egyptian setup and to estimate their prevalence in Alexandria.
Methods
A community-based survey was conducted among a representative sample of children using a multistage cluster sampling technique. A pre-designed interviewing questionnaire and the Arabic translation of CSHCN screener were used.
Results
The prevalence of CSHCN was 12.2% and 91.8% of them had the three domains of health care needs. The most prevalent conditions requiring special health care were sensory and cognitive impairments and impaired mobility. Type of family was the only significant factor associated with special health care needs.
Conclusion
It is concluded that the screener can easily be used and help in identifying the majority of children that need to be the focus of the National health care services. It is recommended that the school health services add the screener to assist depicting the existing gaps in the health care system.
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References
McPherson, M. et al. A new definition of children with special health care needs. Pediatrics 102, 137–140 (1998).
Goldson, E. et al. Guidelines for the care of the child with special health care needs. Adv. Pediatr. 53, 165–182 (2006).
Garrett, B., Davidoff, A. & Yemane, A. Effects of medicaid managed care on health services access and utilization. Health Serv. Res. 38, 575–594 (2003).
Aron, L. Y., Loprest, P. J. & Steuerle, C. E. Serving Children and Disabilities: A Systematic Look at the Programs. (Urban Institute Press, Washington DC, 1996).
Blumberg, L. J., Dubai, L. & Norton, S. A. Did the medical expansions for children displace private insurance? An analysis using SIPP data. J. Health Econ. 19, 33–60 (2000).
Bethell, C. D. et al. Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambul. Pediatr. 2, 38–47 (2002).
Association of Maternal and Child Health Programs (AMCHP). Reaching the Children: The Relationship between Title V and Part C. (AMCHP, Washington, DC, 2003; 9 p).
Newacheck, P. W. et al. An epidemiologic profile of children with special health care needs. Pediatrics 102, 117–123 (1998).
Stein, R. E. K. & Silver, E. J. Operationalizing a conceptually based noncategorical definition. A first look at U.S. children with chronic conditions. Arch. Pediatr. Adolesc. Med. 153, 68–74 (1999).
Child and Adolescent Health Measurement Initiative. The children with special health care needs (CSHCN) screener. (CAHMI, Baltimore, 1998; 10p).
Child and adolescent initiative. Who are children with special health care needs (CSHCN). (CAHMI, Baltimore, 2012; 2p.
Bethell, C. D. et al. Comparison of the children with special health care needs screener to the questionnaire for identifying children with chronic conditions–revised. Ambul. Pediatr. 2, 49–57 (2002).
Read, D. et al. An evaluation of the linguistic and cultural validity of the Spanish language version of the children with special health care needs screener. Matern. Child. Health J. 11, 568–585 (2007).
Kennedy, P. editor. The Oxford Handbook of Rehabilitation Psychology. (Oxford University Press, Oxford, New York, 2012; 171–188).
Mazur, J. Adaptation of CSHCN instrument for the use in assessing the prevalence of chronic diseases in children and adolescents in Poland. Przegl. Epidemiol. 63, 137–142 (2009).
McDougall, J. et al. Chronic physical health conditions and disability among Canadian school-aged children: a national profile. Disabil. Rehabil. 26, 35–45 (2004).
Van Dyck, P. et al. The national survey of children with special health care needs. Ambul. Pediatr. 2, 29–37 (2002).
Blackburn, C. M., Spencer, N. J. & Read, J. M. Prevalence of childhood disability and the characteristics and circumstances of disabled children in the UK: secondary analysis of the Family Resources Survey. BMC Pediatr. 10, 21 (2010).
Daniel, W. W. Biostatistics: A Foundation for Analysis in Health Sciences. 7th ed (John Wiley and sons, New York, Toronto, 1999).
Child and Adolescent Health Measurement Initiative (CAHMI). 2011/12 National Survey of Children’s Health. Child Health Indicator and Subgroups SAS Codebook, Version 1.0. Data Resource Center for Child and Adolescent Health.
Davidoff, A. J. Child health. Identifying children with special health care needs in the National interview survey: a new resource for policy analysis. Health Serv. Res. 39, 53–71 (2004).
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Wahdan, I.H., El-Nimr, N.A. Identifying children with Special Health Care Needs in Alexandria, Egypt. Pediatr Res 84, 57–61 (2018). https://doi.org/10.1038/s41390-018-0008-x
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DOI: https://doi.org/10.1038/s41390-018-0008-x
