Table 2 RD registries by country and dimension

From: The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers

RD registries by country and dimension

No

(%)

Country

  Australia

5

(2.3)

  Austria

3

(1.4)

  Belgium

2

(1)

  Bulgaria

10

(4.5)

  Canada

4

(1.8)

  Czech Republic

5

(2.3)

  France

17

(7.7)

  Germany

13

(5.9)

  International

40

(18)

  Ireland

3

(1.4)

  Italy

28

(12.6)

  Japan

2

(1)

  Spain

10

(4.5)

  United Kingdom

12

(5.4)

  United States

55

(24.8)

  Others

13

(5.9)

Dimension (no. of cases included)

  >5000

13

(5.9)

  1000–5000

61

(27.5)

  500–1000

41

(18.5)

  100–500

82

(36.9)

  <100

25

(11.3)