Table 1 Health professional and patient advocate demographic data
Total (n = 31) | |
|---|---|
Age group (years) | |
21–30 | 2 |
31–40 | 8 |
41–50 | 10 |
51–60 | 11 |
Gender | |
Female | 23 |
Male | 8 |
Profession | |
Clinical geneticist | 3 |
Fetal medicine specialist | 3 |
Genetic counsellor | 2 |
Nurse specialist (paediatric care) | 3 |
Nurse specialist (adolescent/adult care) | 1 |
Occupational therapist (paediatric care) | 2 |
Endocrinologist / metabolic bone specialist (paediatric care) | 7 |
Patient advocate | 2 |
Physiotherapist (paediatric care) | 5 |
Psychologist (paediatric care) | 1 |
Rheumatologist (adolescent/adult) | 2 |
Years working with families affected with OI | |
≤5 | 13 |
6–15 | 11 |
16–25 | 7 |
Current practice location | |
England (North) | 4 |
England (Midlands) | 5 |
England (London) | 12 |
England (South) | 8 |
Scotland | 2 |
