Fig. 3: PROMS/PREMS in cardiogenetics. | European Journal of Human Genetics

Fig. 3: PROMS/PREMS in cardiogenetics.

From: Are disease-specific patient-reported outcomes measures (PROMs) used in cardiogenetics? A systematic review

Fig. 3

This figure shows the percentage generic PROMs used (82%) and the disease-specific PROMs used (18%). a Generic PROMs: the MOS Short Form 36 (SF-36) or its briefer form, the SF-12. b Disease-specific: the Kansas City Cardiomyopathy Questionnaire (KCCQ); the Minnesota Living with Heart Failure Questionnaire (MLFHQ). In addition to PROMs, some studies used an unvalidated patient-reported measure (47%) together with generic PROM. PREM the patient satisfaction scale (PSS), the satisfaction with decision scale (SWD), the patient experience scale for HCM (PES HCM).

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