Table 1 Demographics of national patient survey participants.
Patients | Relatives | |
|---|---|---|
Number | 71 | 171 |
Age (Years) Mean (IQR) | 58.4 (46.0–70.8) | 42.5 (31.3–57.6) |
Age (Years) categorised (%) | ||
Under 20 | 0 (0) | 11 (6.5) |
20–30 | 0 (0) | 28 (16.5) |
30–40 | 2 (2.8) | 41 (24.1) |
40–50 | 11 (15.5) | 29 (17.1) |
50–60 | 29 (40.8) | 28 (16.5) |
60–70 | 22 (31.0) | 22 (12.9) |
70+ | 7 (9.9) | 11 (6.5) |
Sex (%) | ||
Male | 36 (50.7) | 68 (39.8) |
Female | 35 (49.3) | 103 (60.2) |
Ethnicity (%) | ||
White | 69 (97.2) | 165 (95.9) |
Black | 1 (1.4) | 1 (0.6) |
Asian | 0 (0.0) | 1 (0.6) |
Chinese | 1 (1.4) | 0 (0.0) |
Mixed/Other | 0 (0) | 5 (2.9) |
Region (%) | ||
Cymru/Wales | 4 (5.9) | 7 (4.1) |
East | 5 (7.4) | 8 (4.7) |
East Midlands | 7 (10.3) | 17 (10.1) |
London | 7 (10.3) | 18 (10.7) |
North East | 2 (2.9) | 6 (3.6) |
North west | 4 (5.9) | 19 (11.2) |
Scotland | 2 (2.9) | 4 (2.4) |
South East | 13 (19.1) | 7 (4.1) |
South West | 13 (19.1) | 35 (20.7) |
West Midlands | 3 (4.4) | 24 (14.2) |
Yorkshire and the Humber | 8 (11.8) | 11 (6.5) |
Time since aortic dissection (%) | ||
One year | 17 (23.9) | na |
Two years | 7 (9.9) | na |
Three years | 12 (16.9) | na |
More than three years | 35 (49.3) | na |
Relation to person with dissection (%) | ||
First degree | na | 154 (89.0) |
Second degree | na | 16 (9.3) |
Other | na | 3 (1.7) |
Diagnosed with syndromic condition (%) | ||
Yes | 6 (8.5) | 5 (3.1) |
No | 65 (91.5) | 159 (97.0) |
Had a relative diagnosed with a syndromic condition (%) | ||
Yes | 6 (8.5) | na |
No | 58 (81.7) | na |
Don’t know | 7 (9.9) | na |
Received genetic testing (%) | ||
No, but was offered it | 3 (2.9) | 3 (1.9) |
No, wasn’t offered it | 34 (49.3) | 120 (77.4) |
Yes | 33 (47.8) | 32 (20.7) |
Received genetics appointment (%) | ||
Yes | na | 15 (9.2) |
No | na | 143 (87.7) |
Not sure/ Don’t want to say | na | 5 (3.1) |
