Table 1 Participant characteristics in the Attitudes to Gene Therapy for the Eye Study.
From: Survey of perspectives of people with inherited retinal diseases on ocular gene therapy in Australia
Respondent status | Total | p valuea | ||
|---|---|---|---|---|
Adult patient | Parent/caregiver | |||
(n = 639) | (n = 42) | (N = 681) | ||
Respondent age, years | <0.001 | |||
Range | 18–93 | 18–76 | 18–93 | |
Mean (SD) | 54.1 (15.9) | 44.5 (10.7) | 53.5 (15.8) | |
Submission type, n (%) | 0.677 | |||
Online | 554 (86.7%) | 39 (92.9%) | 593 (87.1%) | |
Paper | 77 (12.1%) | 3 (7.1%) | 80 (11.7%) | |
Phone interview | 8 (1.3%) | 0 (0.0%) | 8 (1.2%) | |
Gender, n (%) | 0.010 | |||
Male | 316 (49.5%) | 11 (26.2%) | 327 (48.0%) | |
Female | 321 (50.2%) | 31 (73.8%) | 352 (51.7%) | |
Non-binary | 2 (0.3%) | 0 (0.0%) | 2 (0.3%) | |
Highest level of education completed, n (%) | 0.728 | |||
Primary school | 15 (2.3%) | 0 (0.0%) | 15 (2.2%) | |
Secondary school (Year 10 or above) | 209 (32.7%) | 14 (33.3%) | 223 (32.7%) | |
Trade certificate | 125 (19.6%) | 5 (11.9%) | 130 (19.1%) | |
Bachelor’s degree | 159 (24.9%) | 13 (31.0%) | 172 (25.3%) | |
Post-graduate degree | 117 (18.3%) | 9 (21.4%) | 126 (18.5%) | |
I prefer not to say | 14 (2.2%) | 1 (2.4%) | 15 (2.2%) | |
Gross annual household income, n (%) | 0.268 | |||
<$18,200 | 41 (6.4%) | 1 (2.4%) | 42 (6.2%) | |
$18,201–$37,000 | 113 (17.7%) | 3 (7.1%) | 116 (17.0%) | |
$37,001–$87,000 | 157 (24.6%) | 11 (26.2%) | 168 (24.7%) | |
$87,001–$180,000 | 168 (26.3%) | 17 (40.5%) | 185 (27.2%) | |
More than $180,001 | 57 (8.9%) | 4 (9.5%) | 61 (9.0%) | |
I prefer not to say | 103 (16.1%) | 6 (14.3%) | 109 (16.0%) | |
Age when symptoms first appeared, years | <0.001 | |||
Range | 0–81 | 0–40 | 0–81 | |
Median (IQR) | 22 (11–36) | 3 (0–6) | 20 (10–35) | |
Most recent decline in vision within, n (%) | <0.001 | |||
No decline, stable vision | 60 (9.4%) | 15 (35.7%) | 75 (11.0%) | |
Less than 6 months | 79 (12.4%) | 3 (7.1%) | 82 (12.0%) | |
1 year | 130 (20.3%) | 8 (19.0%) | 138 (20.3%) | |
5 years | 216 (33.8%) | 12 (28.6%) | 228 (33.5%) | |
10 years | 154 (24.1%) | 4 (9.5%) | 158 (23.2%) | |
