Table 2 Characteristics of RUD patients described by family members.

From: “It seems like COVID-19 now is the only disease present on Earth”: living with a rare or undiagnosed disease during the COVID-19 pandemic

 

n

%

Number of RUD patients cared for

One

123

88.5%

Two

11

7.9%

More than two

5

3.6%

Total family member responses

139

100.0%

Patient’s relationship to family member

Child

139

89.7%

Spouse/domestic partner

7

4.5%

Parent

4

2.6%

Other family member

5

3.2%

Total patients describeda

155

100.0%

Patient age

Less than 1 year

17

11.0%

1–5 years

46

29.9%

6–10 years

29

18.8%

11–17 years

16

10.4%

18 and older

46

29.9%

Total patients describeda,b

154

100.0%

Lives in household of family member

Yes, full time

141

94.0%

Yes, part time

8

5.3%

No

1

0.1%

Total patients describeda,c

150

100.0%

  1. aIncludes data for first RUD patient and second RUD patient, if reported by family member. Detailed data were collected on a maximum of two RUD patients per caregiver.
  2. bData missing for one patient described by a family member.
  3. cData missing for 5 patients described by a family member.