Table 2 Demographic characteristics of survey respondents and comparison across variables indicative of a favorable experience with regard to study participation.
From: Patient reactions to receiving negative genomic screening results by mail
My results were valuablea | I would participate againa | Recommend to othersa | ||||
|---|---|---|---|---|---|---|
Yes | No | Yes | No | Yes | No | |
Characteristic | 1398 (98.0) | 28 (2.0) | 1357 (95.1) | 70 (4.9) | 1033 (72.2) | 398 (27.8) |
Sexb | ||||||
Male | 580 (42.1) | 13 (50.0) | 568 (42.6) | 30 (43.5) | 453 (44.6) | 146 (37.2) |
Female | 799 (57.9) | 13 (50.0) | 767 (57.5) | 39 (56.5) | 562 (55.4) | 247 (62.9) |
Age (years) at study invitec | ||||||
Mean (SD) | 60.7 (7.4) | 61.8 (6.1) | 60.7 (7.3) | 60.8 (8.2) | 60.6 (7.5) | 61.0 (6.9) |
Range | 27–71 | 50 - 70 | 27–71 | 29–71 | 28–71 | 27–71 |
Raced | ||||||
White | 1353 (96.8) | 26 (92.9) | 1311 (96.6) | 67 (95.8) | 997 (96.5) | 385 (96.7) |
Other | 45 (3.2) | 2 (7.1) | 46 (3.4) | 3 (4.3) | 36 (3.5) | 13 (3.3) |
Ethnicityc | ||||||
Non-Hispanic | 1374 (99.7) | 26 (100.0) | 1330 (99.7) | 69 (100.0) | 1011 (99.7) | 392 (99.8) |
Hispanic | 4 (0.3) | 0 (0.0) | 4 (0.3) | 0 (0.0) | 3 (0.3) | 1 (0.3) |
Marital statusb | ||||||
Married/partnered | 1153 (83.6) | 20 (76.9) | 1118 (83.8) | 57 (82.6) | 847 (83.5) | 331 (84.2) |
Not married/partnered | 226 (16.4) | 6 (23.1) | 217 (16.3) | 12 (17.4) | 168 (16.6) | 62 (15.8) |
Genetic knowledgec | ||||||
Mean (SD) | 8.3 (2.2) | 7.4 (2.8) | 8.4 (2.1) | 6.5 (2.8) | 8.3 (2.2) | 8.3 (2.2) |
Range | 0–11 | 0–11 | 0–11 | 0–11 | 0–11 | 0–11 |
Familiarity with study proceduresc | ||||||
Mean (SD) | 4.2 (2.0) | 2.8 (2.4) | 4.2 (2.0) | 2.8 (2.3) | 4.3 (2.0) | 3.9 (2.2) |
Range | 0–9 | 0–8 | 0–9 | 0–8 | 0–9 | 0–9 |
Difficulty understanding resultsc | ||||||
Mean (SD) | 4.5 (3.0) | 3.1 (2.9) | 4.5 (3.0) | 3.6 (2.8) | 4.7 (3.0) | 3.8 (2.7) |
Range | 0–9 | 0–9 | 0–9 | 0–9 | 0–9 | 0–9 |
Educationb | ||||||
Grades 9–11 | 1 (0.1) | 0 (0.0) | 1 (0.1) | 0 (0.0) | 1 (0.1) | 0 (0.0) |
Grade 12/GED | 163 (11.8) | 3 (11.1) | 148 (11.0) | 18 (26.1) | 130 (12.7) | 37 (9.4) |
College 1–3 years | 477 (34.5) | 16 (59.3) | 463 (34.6) | 30 (43.5) | 362 (35.5) | 133 (33.9) |
College 4+ years | 398 (28.8) | 3 (11.1) | 389 (29.0) | 14 (20.3) | 291 (28.5) | 112 (28.6) |
Grad/professional school | 342 (24.8) | 5 (18.5) | 339 (25.3) | 7 (10.1) | 237 (23.2) | 110 (29.1) |
Health literacyd | ||||||
Adequate health literacy | 1299 (94.1) | 27 (100) | 1272 (95.0) | 54 (78.3) | 964 (94.5) | 365 (93.4) |
Inadequate health literacy | 81 (5.9) | 0 (0.0) | 67 (5.0) | 15 (21.7) | 56 (5.5) | 26 (6.7) |
Unable to access physician due to costd | 27 (2.0) | 0 (0.0) | 24 (1.8) | 3 (4.4) | 17 (1.7) | 10 (2.6) |
Financial situation (income)b | ||||||
More than enough | 1132 (82.4) | 20 (76.9) | 1104 (83.0) | 50 (72.5) | 832 (82.3) | 324 (82.7) |
Just enough | 194 (14.1) | 6 (23.1) | 185 (13.9) | 13 (18.8) | 144 (14.2) | 55 (14.0) |
Have to cut back | 40 (2.9) | 0 (0.0) | 36 (2.7) | 3 (4.4) | 29 (2.9) | 10 (2.6) |
Difficulty paying bills | 8 (0.6) | 0 (0.0) | 6 (0.5) | 3 (4.4) | 6 (0.6) | 3 (0.8) |
Insurance coverageb | ||||||
None | 9 (0.7) | 0 (0.0) | 8 (0.6) | 1 (1.5) | 9 (0.9) | 0 (0.0) |
Private | 1074 (77.8) | 22 (81.5) | 1045 (78.0) | 50 (72.5) | 795 (77.9) | 304 (77.6) |
Public program | 297 (21.5) | 5 (18.5) | 286 (21.4) | 18 (26.1) | 216 (21.2) | 88 (22.5) |
