Table 2 Comparison data for parents whose child received a diagnostic or nondiagnostic urES result, and parents whose child was alive or deceased at the time of survey.
From: Parental experiences of ultrarapid genomic testing for their critically unwell infants and children
n (%) | Diagnostic urES (n = 27) | Nondiagnostic urES (n = 26) | Alive at time of survey (n = 37) | Deceased at time of survey (n = 16) |
|---|---|---|---|---|
Decision regret | ||||
None (DRS score 0) | 17 (63) | 14 (54) | 22 (59) | 9 (56) |
Mild (DRS score 1–25) | 6 (22) | 8 (31) | 10 (27) | 4 (25) |
Moderate to high (DRS score >25) | 4 (15) | 4 (15) | 5 (14) | 3 (19) |
Perceived value of rapid test | ||||
Perceived level of importance of rapid result | ||||
Unimportant | 0 (0) | 0 (0) | 0 (0) | 0 (0) |
Neither important nor unimportant | 1 (4) | 0 (0) | 0 (0) | 1 (6) |
Important | 4 (15) | 2 (8) | 5 (14) | 1 (6) |
Very important | 22 (81) | 24 (92) | 32 (86) | 14 (88) |
Perception whether rapid result made a difference to child’s care | ||||
No | 9 (33) | 14 (54) | 15 (41) | 8 (50) |
Unsure | 1 (4) | 3 (12) | 4 (11) | 0 (0) |
Yes | 17 (63) | 9 (35) | 18 (49) | 8 (50) |
