Table 1 Demographic, clinical, and psychological characteristics of the patients participating in the study.

From: Patients’ and professionals’ perspective of non-in-person visits in hereditary cancer: predictors and impact of the COVID-19 pandemic

 

Before the COVID-19 pandemic (T0 and T1)

During the COVID-19 pandemic (T2)

N = 578

N = 439

Demographics

n (%)

n (%)

Gender

  

   Female

433 (74.9)

333 (75.9)

   Male

145 (25.1)

106 (24.1)

Age at inclusion (years)

Age at inclusion (group)

48.2 [39–58]a

46.7 [39–55]a

   <30

57 (9.9)

43 (9.8)

   31–40

115 (19.9)

96 (21.9)

   41–50

171 (29.6)

148 (33.7)

   51–60

123 (21.2)

90 (20.5)

   61–70

79 (13.7)

45 (10.2)

   >70

33 (5.7)

17 (3.9)

Level of education

  

   High school or more

495 (85.6)

319 (72.7)

   Up to secondary school

83 (14.4)

120 (27.3)

Partner

  

   Yes

443 (76.6)

328 (74.7)

   No

135 (23.4)

111 (25.3)

Clinical characteristics

n (%)

n (%)

Cancer diagnosis

  

   Yes

312 (54)

236 (53.8)

   No

266 (46)

203 (46.2)

Number of cancers

  

   cancer

249 (43.1)

190 (43.2)

   Multiple cancers

63 (10.9)

46 (10.5)

Type of first cancer

  

   Breast cancer

201 (64.5)

160 (67.8)

   Ovarian cancer

46 (14.7)

27 (11.4)

   Colorectal cancer

20 (6.4)

16 (6.8)

   Other cancer

45 (14.4)

33 (14)

Type of genetic test

  

   Single PV testing

259 (44.8)

197 (44.9)

   Panel testing

319 (55.2)

242 (55.1)

Genetic test results

  

   No PV detected

432 (74.7)

328 (74.7)

   PV detected

146 (25.3)

111 (25.3)

Psychological characteristics

n (%)

n (%)

Cancer worry

  

    Baseline

11.2 [9–13]a

11.1 [9–13]a

    Post-test

10.9 [8–12.75]a

10.8 [9–12]a

Post-test uncertainty

6.3 [2–9]a

6.2 [2–9]a

Personality traits

  

   Neuroticism

  

     High

326 (56.4)

244 (55.6)

     Medium

145 (25.1)

107 (24.3)

     Low

107 (18.5)

88 (20.1)

   Extraversion

  

     High

114 (19.7)

84 (19.1)

     Medium

193 (33.4)

153 (34.9)

     Low

271 (46.9)

202 (46)

   Openness

  

     High

143 (24.7)

123 (28)

     Medium

192 (33.2)

141 (32)

     Low

243 (42.1)

175 (40)

   Agreeableness

  

     High

141 (24.4)

112 (25.5)

     Medium

196 (33.9)

153 (34.9)

     Low

241 (41.7)

174 (39.6)

   Conscientiousness

  

     High

125 (21.6)

96 (21.9)

     Medium

135 (23.4)

106 (24.1)

     Low

318 (55)

237 (54)

  1. PV pathogenic variant.
  2. aMedian [IQR].