Table 1 Demographic, clinical, and psychological characteristics of the patients participating in the study.
Before the COVID-19 pandemic (T0 and T1) | During the COVID-19 pandemic (T2) | |
|---|---|---|
N = 578 | N = 439 | |
Demographics | n (%) | n (%) |
Gender | ||
Female | 433 (74.9) | 333 (75.9) |
Male | 145 (25.1) | 106 (24.1) |
Age at inclusion (years) Age at inclusion (group) | 48.2 [39–58]a | 46.7 [39–55]a |
<30 | 57 (9.9) | 43 (9.8) |
31–40 | 115 (19.9) | 96 (21.9) |
41–50 | 171 (29.6) | 148 (33.7) |
51–60 | 123 (21.2) | 90 (20.5) |
61–70 | 79 (13.7) | 45 (10.2) |
>70 | 33 (5.7) | 17 (3.9) |
Level of education | ||
High school or more | 495 (85.6) | 319 (72.7) |
Up to secondary school | 83 (14.4) | 120 (27.3) |
Partner | ||
Yes | 443 (76.6) | 328 (74.7) |
No | 135 (23.4) | 111 (25.3) |
Clinical characteristics | n (%) | n (%) |
Cancer diagnosis | ||
Yes | 312 (54) | 236 (53.8) |
No | 266 (46) | 203 (46.2) |
Number of cancers | ||
cancer | 249 (43.1) | 190 (43.2) |
Multiple cancers | 63 (10.9) | 46 (10.5) |
Type of first cancer | ||
Breast cancer | 201 (64.5) | 160 (67.8) |
Ovarian cancer | 46 (14.7) | 27 (11.4) |
Colorectal cancer | 20 (6.4) | 16 (6.8) |
Other cancer | 45 (14.4) | 33 (14) |
Type of genetic test | ||
Single PV testing | 259 (44.8) | 197 (44.9) |
Panel testing | 319 (55.2) | 242 (55.1) |
Genetic test results | ||
No PV detected | 432 (74.7) | 328 (74.7) |
PV detected | 146 (25.3) | 111 (25.3) |
Psychological characteristics | n (%) | n (%) |
Cancer worry | ||
Baseline | 11.2 [9–13]a | 11.1 [9–13]a |
Post-test | 10.9 [8–12.75]a | 10.8 [9–12]a |
Post-test uncertainty | 6.3 [2–9]a | 6.2 [2–9]a |
Personality traits | ||
Neuroticism | ||
High | 326 (56.4) | 244 (55.6) |
Medium | 145 (25.1) | 107 (24.3) |
Low | 107 (18.5) | 88 (20.1) |
Extraversion | ||
High | 114 (19.7) | 84 (19.1) |
Medium | 193 (33.4) | 153 (34.9) |
Low | 271 (46.9) | 202 (46) |
Openness | ||
High | 143 (24.7) | 123 (28) |
Medium | 192 (33.2) | 141 (32) |
Low | 243 (42.1) | 175 (40) |
Agreeableness | ||
High | 141 (24.4) | 112 (25.5) |
Medium | 196 (33.9) | 153 (34.9) |
Low | 241 (41.7) | 174 (39.6) |
Conscientiousness | ||
High | 125 (21.6) | 96 (21.9) |
Medium | 135 (23.4) | 106 (24.1) |
Low | 318 (55) | 237 (54) |