Table 2 Attributes and attribute levels

From: Eliciting parental preferences and values for the return of additional findings from genomic sequencing

Attributes

Levels

1. Opportunity to change the choices you made about additional findings over time1

No

Yes

2. How the results of additional analysis are returned to you when there is an additional finding

Electronically through a secure online portal

Directly, telehealth or phone

Directly, in person

3. Who returns the results of additional analysis to you when there is an additional finding (relevant only when results are returned directly)

Noone

Your general practitioner

A relevant medical specialist

A genetic counsellor

A clinical genetics specialist

4. How the results of additional analysis are returned to you when there is NOT an additional finding

Electronically through a secure online portal

Directly, telehealth or phone

Directly, in person

5. Who returns the results of additional analysis to you when there is NOT an additional finding (relevant only when results are returned directly)

Noone

Your general practitioner

A relevant medical specialist

A genetic counsellor

A clinical genetics specialist

6. How long is the waiting period for seeing a medical specialist if there is an additional finding

2 weeks

2 months

6 months

7. Options for accessing additional information if there is an additional finding

Additional online information is not available

You will be given immediate access to relevant high-quality online resources

8. What happens if new information relevant to your results becomes available

No updates will be provided automatically

Updates will be provided upon request

Updates will be provided automatically in a secure online portal

9. Cost of testing to you (AU$)

250

500

1000

2000

  1. 1such as the choice to delay the decision to receive additional findings (AF), receive a different type of AF, or opt-out of receiving AF at all.