Table 1 Summary of measurement domains assessed by the NCIPR Survey.

From: COVID-19 patient accounts of illness severity, treatments and lasting symptoms

Domain

Topics addressed

COVID-19 illness

Date if illness; symptoms experienced; exposure; length of illness; fever; perceived severity

COVID-19 treatments

Hospitalization; ICU admission; medical treatments; at-home treatments; medications; imaging

COVID-19 testing

Timing; type; facility;  presence of symptoms

COVID-19 impacts

Loss of income; time off work; quarantine behaviors; perceived life disruption; change in social support, sleep, energy levels, stress, relationship satisfaction

COVID-19 perceptions

Anxiety about illness; satisfaction with medical care; opinion about when things will go back to normal

COVID-19 lasting effects

Length of symptoms; types of symptoms; specific mood disturbances; specific cognitive disturbances; estimate of time to full return to health

Physical characteristics

Age; height; weight; blood type

Health characteristics

Preexisting health conditions; prior substance use and mental health treatment; current stress level; prior tonsillectomy

Vaccine information and attitudes

Date received; manufacturer; side effects; if not vaccinated, attitudes about vaccination for self and/or children; plans to relax COVID-19 safety behaviors after vaccination; if breastfeeding, attitudes about vaccination and infant side effects

Demographic and financial context

Gender identity; employment (self and partner); income change due to COVID-19; stability of housing; public assistance; medical insurance; satisfaction with financial situation; MacArthur Scale of subjective social status

Home environment

Pets; number of individuals living in home; number of household members that became ill; number of bedrooms in home

Patient behavior

COVID safety behavior; coping strategies; drug, nicotine and alcohol consumption; exercise; use of meditation/mindfulness; religious practices; family/friend support; screen use; social media use

Perceived discrimination

Amount; kind; distress

  1. Data across these domains is contained within the New York NCIPR dataset.
  2. The NCIPR questionnaire also includes questions about child ages, breastfeeding, education, race/ethnicity, income, number of bedrooms in home, utilization of public assistance, and preferred medical health system. For data release and compliance with regulation on indirect identifiers and patient confidentiality, these are removed from released data, as described below.
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