Table 3 Number of patients and visits by scale/category of information.

From: Chances and challenges of a long-term data repository in multiple sclerosis: 20th birthday of the German MS registry

 

Number of visits

Number of patients

Total

196,632

33,174

History of onset and diagnosis (dates)

–

29,019

Education

121,155

27,172

Employment

154,394

28,677

Family

178,794

31,096

Nine-hole peg test

30,019

8194

25-foot walk test

17,829

7808

EDSS

201,712

33,059

MRI

35,427

18,318

DMD (y/n)

164,660

31,734

Current MS-symptoms*

172,032

32,277

(In-)dependence**

165,204

31,597

  1. DMD disease modifying drugs, EDSS expanded disability status scale, MRI magnetic resonance imaging.
  2. *Fatigue, paresis, bowel and bladder disturbances etc.
  3. **Care settings and the prescription/use of aids.
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