Table 1 Demographic and clinical variables of CHD and TPC groups.

Demographics and cognitive ability

Sex

 Male

6

4

 Female

3

3

Age (years)

 Range

6.8–11.0

6.4–11.7

 Median

8.8

8.5

Birth characteristics

Gestation (weeks)

 Range

36.0–40.0

Unavailable; all > 37 and < 42 weeks

 Median

39

Birth weight (kg)

 Range

2.240–3.640

 Median

2.807

 Mean (SD)

2.973 (0.45)

Head circumference at birth (cm)

 Range

30.5–35.5

 Median

32.5

 Mean (SD)

32.9 (1.8)

Length at birth (cm)

 Range

45.0–53.3

 Median

47.5

 Mean (SD)

48.6 (2.6)

Cardiac, surgical, and medical characteristics

Cardiac diagnoses

 Double outlet right ventricle with left-sided hypoplasia

1

 Double outlet right ventricle with pulmonary outflow obstruction

1

 Double inlet left ventricle

1

 Pulmonary atresia with intact ventricular septum

2

 Single ventricle, otherwise not classified

1

 Tricuspid atresia

2

Unbalanced AV canal

1

Stage I palliation

 None

2

 Norwood with BTT shunt

1

 BTT shunt (without CPB)

5

 Central shunt (with CPB)

1

Hospital LOS after surgery (days)

 Range

6–33

 Median

14

 Mean (SD)

16.9 (8.9)

Cardiac arrest/CPR

0

ECMO

0

Stage 2 palliation surgery

Age at surgery (days)

 Range

79–263

 Median

152

 Mean (SD)

164 (59)

Hospital LOS after surgery (days)

 Range

4–26

 Median

6.5

 Mean (SD)

10.3 (7.5)

Cardiac arrest/CPR

0

ECMO

0

Fontan surgery

 Age at surgery (years)

 Range

2.9–5.7

 Median

4.4

 Mean (SD)

4.3 (0.8)

Hospital LOS after surgery (days)

 Range

5–72

 Median

7

 Mean (SD)

17.2 (22.1)

Cardiac arrest/CPR

0

ECMO

0

Syndromes/associations

 None

5

 Heterotaxy

3

 VATER

1

Other major organ system anomalies

 None

2

 Musculoskeletal

1

 Renal/genitourinary

2