Table 1 Characteristics of the study population of 120 patients diagnosed with childhood-onset, adamantinomatous craniopharyngioma (CP) and recruited in the studies KRANIOPHARYNGEOM 2000/2007 between 2000 and 2019. Categorical variables are presented as n (%).
From: Vision-related quality of life in patients with childhood-onset craniopharyngioma
Craniopharyngioma (CP) patient characteristics | Study cohort | KRANIOPHARYNGEOM 2000/2007 |
|---|---|---|
n (%) | n (%) | |
Visual impairment at CP diagnosis | 84 (70) | n.a |
Sex, female/male | 60 (50)/60 (50) | 150 (50)/150 (50) |
Median age at CP diagnosis, years (range) | 10 (1.3–16.8) | 8.8 (0.01–17.97) |
First symptom in history of CP patients | ||
Headache | 52 (42) | 97 (32) |
Visual impairment | 24 (20) | 58 (19) |
Growth retardation | 15 (12) | 44 (15) |
Nausea/vomiting | 5 (4) | 4 (1) |
Polyuria/polydipsia | 5 (4) | 7 (2) |
Neurological symptoms | 5 (4) | 19 (6) |
Incidental finding | 2 (2) | 3 (1) |
Precocious puberty | 1 (1) | 2 (1) |
Weight gain | 0 (0) | 7 (2) |
Other | 0 (0) | 9 (3) |
n.a | 11 (9) | 50 (17) |
Tumor volume cm3, median (range) | 15.9 (0.9–202.5) | 14.1 (0.002–637.1) |
Tumor location | ||
Extrasellar | 30 (25) | 55 (18) |
Intrasellar and extrasellar | 89 (74) | 202 (67) |
Intrasellar | 0 (0) | 4 (1.3) |
n.a | 1 (1) | 39 (13) |
