Table 1 Rare disease patients socio-demographic data.
2019 | 2020 | 2021 | 2022 | 2023 | Total | |
|---|---|---|---|---|---|---|
Sex | ||||||
Male, n (%) | 409 (53.8) | 430 (55.0) | 597 (54.6) | 557 (55.0) | 708 (53.3) | 2701 (54.3) |
Female, n (%) | 351 (46.2) | 352 (45.0) | 496 (45.4) | 455 (45.0) | 620 (46.7) | 2275 (45.7) |
Insurance coverage | ||||||
Yes, n (%) | 636 (83.7) | 652 (83.4) | 917 (83.9) | 798 (78.9) | 1092 (82.2) | 4095 (83.0) |
No, n (%) | 124 (16.3) | 130 (16.6) | 176 (16.1) | 171 (16.9) | 237 (17.8) | 838 (17.0) |
Age (Years) | ||||||
Average | 37.18 | 36.13 | 35.40 | 32.64 | 27.46 | |
Below 9, n (%) | 128 (16.8) | 146 (18.7) | 237 (21.7) | 266 (26.3) | 447 (33.7) | 1224 (24.6) |
10–19, n (%) | 75 (9.9) | 103 (13.2) | 139 (12.7) | 156 (15.4) | 255 (19.2) | 728 (14.6) |
20–29, n (%) | 80 (10.5) | 62 (7.9) | 82 (7.5) | 70 (6.9) | 75 (5.6) | 369 (7.4) |
30–39, n (%) | 111 (14.6) | 108 (13.8) | 132 (12.1) | 90 (8.9) | 105 (7.9) | 546 (11.1) |
40–49, n (%) | 118 (15.5) | 109 (13.9) | 149 (13.6) | 121 (12.0) | 132 (9.9) | 629 (12.6) |
50–59, n (%) | 109 (14.3) | 103 (13.2) | 150 (13.7) | 124 (12.3) | 127 (9.6) | 613 (12.3) |
60+, n (%) | 139 (18.3) | 151 (19.3) | 204 (18.7) | 185 (18.3) | 186 (14.0) | 865 (17.4) |
Marital status | ||||||
Single, n (%) | 234 (30.8) | 299 (38.2) | 427 (39.1) | 441 (43.6) | 737 (55.5) | 2138 (43.6) |
Married, n (%) | 454 (59.7) | 452 (57.8) | 577 (52.8) | 508 (50.2) | 541 (40.7) | 2532 (51.6 |
Widowed, n (%) | 8 (1.1) | 8 (1.0) | 10 (0.9) | 13 (1.3) | 21 (1.6) | 60 (1.2) |
Divorced, n (%) | 9 (1.2) | 3 (0.4) | 8 (0.7) | 8 (0.8) | 12 (0.9) | 40 (0.8) |
Other, n (%) | 34 (4.5) | 19 (2.4) | 32 (2.9) | 32 (3.2) | 17 (1.3) | 134 (2.8) |
Occupation | ||||||
Civil servants, n (%) | 18 (2.4) | 13 (1.7) | 13 (1.2) | 7 (0.7) | 10 (0.8) | 61 (1.2) |
PTP, n (%) | 5 (0.7) | 2 (0.3) | 4 (0.4) | 5 (0.5) | 6 (0.5) | 22 (0.4) |
Employed, n (%) | 27 (3.6) | 27 (3.5) | 41 (3.8) | 24 (2.4) | 22 (1.7) | 141 (2.8) |
BM, n (%) | 1 (0.1) | 0 (0.0) | 1 (0.1) | 2 (0.2) | 0 (0.0) | 4 (0.1) |
Teachers, n (%) | 15 (2.0) | 19 (2.4) | 18 (1.6) | 18 (1.8) | 15 (1.1) | 85 (1.7) |
Farmers, n (%) | 140 (18.4) | 137 (17.5) | 167 (15.3) | 106 (10.5) | 147 (11.1) | 697 (14.0) |
Students, n (%) | 79 (10.4) | 102 (13.0) | 166 (15.2) | 192 (19.0) | 294 (22.1) | 833 (16.7) |
MP, n (%) | 0 (0.0) | 2 (0.3) | 1 (0.1) | 1 (0.1) | 0 (0.0) | 4 (0.1) |
Freelancers, n (%) | 20 (2.6) | 22 (2.8) | 28 (2.6) | 13 (1.3) | 14 (1.1) | 97 (1.9) |
Self-employed, n (%) | 2 (0.3) | 6 (0.8) | 1 (0.1) | 2 (0.2) | 3 (0.2) | 14 (0.3) |
Unemployed, n (%) | 66 (8.7) | 71 (9.1) | 116 (10.6) | 94 (9.3) | 152 (11.4) | 499 (10.0) |
Retired, n (%) | 66 (8.7) | 59 (7.5) | 85 (7.8) | 98 (9.7) | 110 (8.3) | 418 (8.4) |
Other, n (%) | 321 (42.2) | 322 (41.2) | 452 (41.4) | 450 (44.5) | 555 (41.8) | 2100 (42.2) |
Hospital admission | ||||||
< 5 times, n (%) | 618 (81.3) | 647 (82.7) | 911 (83.3) | 865 (85.5) | 1130 (85.1) | 4171 (83.9) |
5–10 times, n (%) | 52 (6.8) | 50 (6.4) | 76 (7.0) | 79 (7.8) | 104 (7.8) | 361 (7.2) |
10–15 times, n (%) | 26 (3.4) | 16 (2.0) | 40 (3.7) | 21 (2.1) | 31 (2.3) | 134 (2.7) |
15–20 times, n (%) | 19 (2.5) | 13 (1.7) | 14 (1.3) | 13 (1.3) | 14 (1.1) | 73 (1.5) |
> 20 times, n (%) | 45 (5.9) | 56 (7.2) | 52 (4.8) | 34 (3.4) | 48 (3.6) | 235 (4.7) |
