Table 2 Representative topics of informal caregivers’ concern and distress from online discussion forum generated by NLP/ML topic modeling
From: Mental health care needs of caregivers of people with Alzheimer’s disease from online forum analysis
The likely scenarios of caregivers’ concerns and distress-related issues | |
|---|---|
Topic 1 | • Found time to do housework and make calls. • Eating issues started. |
Topic 2 | • Talk, work, call, sit, and have the loved one eat. • Need to go back to bed and sleep. |
Topic 3 | • Recall how my loved one used to live back when they didn’t have dementia. • With dementia, the loved one does not remember how to drive a car, give a call, come back home, and live alone. |
Topic 4 | • Celebrate victories for loved ones, such as showering and going to the dentist, hoping the loved one forgives me for doing something not pleasant. • The righteousness enables me to do good and give care to loved ones. |
Topic 5 | • Try to keep good thoughts and words like love and peace in my heart. |
Topic 6 | • Can someone give good advice on caring for a loved one with dementia from home? • Dementia and caregiving life started. People visit home and make phone calls. |
Topic 7 | • Worried about moving a loved one to a care facility. • Do not know how I will pay for it. |
Topic 8 | • Need to find good care for loved ones with ADRD. • Want to make sure that loved one is monitored/watched well. |
