Table 2 Employment status, financial challenges and other difficulties for PBC participants, MBC participants and carer participants.
Participants with experience of PBC, N = 470 | Participants with experience of MBC, N = 136 | Carer, N = 30 | ||||||
|---|---|---|---|---|---|---|---|---|
At diagnosis | At the time of survey completion | At diagnosis | At the time of survey completion | At diagnosis | At the time of survey completion | |||
Work status | Full-time | 252 (53.6%) | 154 (32.8%) | 79 (58.1%) | 26 (19.1%) | 16 (53.3%) | 12 (40.0%) | |
Part-time | 109 (23.2%) | 132 (28.1%) | 29 (21.3%) | 29 (21.3%) | 4 (13.3%) | 3 (10.0%) | ||
Not Paid & looking for employment | 14 (3.0%) | 13 (2.8%) | 3 (2.2%) | 2 (1.5%) | 2 (6.7%) | 5 (16.7%) | ||
Not Paid & Not looking for employment | 31 (6.6%) | 53 (11.3%) | 7 (5.1%) | 22 (16.2%) | ||||
Not Paid & Prefer not to say/Missing | 1 (0.2%) | 4 (0.8%) | 0 | 1 (0.7%) | ||||
Retired | 58 (12.3%) | 109 (23.2%) | 16 (11.8%) | 52 (38.2%) | 7 (23.3%) | 9 (30.0%) | ||
Prefer not to say | 4 (0.9%) | 3 (0.6%) | 2 (1.5%) | 4 (2.9%) | 1 (3.3%) | 0 | ||
Missing | 1 (0.2%) | 2 (0.4%) | 0 | 0 | 0 | 1 (3.3%) | ||
Working hours per week | Median [IQR] | 37 [27.5–40] | 30 [18–37] | 37 [28.5–40] | 24 [12–37] | 37.5 [35.5–40] | 37 [27–40] | |
Annual personal income pre-tax | <£12,570 | 72 (15.3%) | 114 (24.3%) | 23 (16.9%) | 38 (27.9%) | 4 (13.3%) | 6 (20.0%) | |
£12,570–25,000 | 102 (21.7%) | 116 (24.7%) | 32 (23.5%) | 54 (39.7%) | 9 (30.0%) | 11 (36.7%) | ||
£25,001–50,000 | 175 (37.2%) | 137 (29.1%) | 49 (36.0%) | 25 (18.4%) | 10 (33.3%) | 6 (20.0%) | ||
£50,001–75,000 | 53 (11.3%) | 47 (10.0%) | 20 (14.7%) | 9 (6.6%) | 3 (10.0%) | 3 (10.0%) | ||
£75,001–100,000 | 22 (4.7%) | 12 (2.6%) | 4 (2.9%) | 2 (1.5%) | 1 (3.3%) | 0 | ||
>£100,000 | 15 (3.2%) | 13 (2.8%) | 3 (2.2%) | 2 (1.5%) | 1 (3.3%) | 2 (6.7%) | ||
Prefer not to say | 29 (6.2%) | 28 (6.0%) | 5 (3.7%) | 6 (4.4%) | 2 (6.7%) | 2 (6.7%) | ||
Missing | 2 (0.4%) | 3 (0.6%) | 0 | 0 | 0 | 0 | ||
Work schedule | Fixed working hours | 192 (40.9%) | 100 (21.3%) | 54 (39.7%) | 19 (14.0%) | 11 (36.7%) | 8 (26.7%) | |
Flexible working hours | 165 (35.1%) | 176 (37.4%) | 53 (39.0%) | 32 (23.5%) | 9 (30.0%) | 7 (23.3%) | ||
NA | 109 (23.2%) | 184 (39.1%) | 28 (20.6%) | 81 (59.6%) | 10 (33.3%) | 15 (50.0%) | ||
Missing or Prefer not to say | 4 (0.9%) | 10 (2.2%) | 1 (0.7%) | 4 (3.0%) | 0 | 0 | ||
Whether participants received benefits | Yes | 29 (6.2%) | 67 (14.3%) | 7 (5.1%) | 62 (45.6%) | 2 (6.7%) | 9 (30.0%) | |
No | 434 (92.3%) | 394 (83.8%) | 129 (94.9%) | 71 (52.2%) | 28 (93.3%) | 21 (70.0%) | ||
Missing | 7 (1.5%) | 9 (1.9%) | 0 | 3 (2.2%) | 0 | 0 | ||
Whether participants were able to fulfil caring responsibilities | Time | Whilst undergoing treatment at hospital | At the time of survey completion | Whilst undergoing treatment at hospital | At the time of survey completion | Whilst the patient undergoing treatment at hospital | ||
Not applicable | 226 (48.1%) | 237 (50.4%) | 56 (41.2%) | 60 (44.1%) | 15 (50.0%) | – | ||
Yes | 87 (18.5%) | 193 (41.1%) | 23 (16.9%) | 39 (28.7%) | 6 (20.0%) | – | ||
No | 157 (33.4%) | 39 (8.3%) | 54 (39.7%) | 35 (25.7%) | 9 (30.0%) | – | ||
Missing | 0 | 1 (0.2%) | 3 (2.2%) | 2 (1.5%) | 0 | – | ||
Difficulty to cover costs associated with travel for treatment | Yes | 369 (78.5) | 100 (73.5%) | – | ||||
No | 94 (20.0%) | 34 (25.0%) | – | |||||
Not Applicable | 1 (0.2%) | 0 | – | |||||
Missing | 6 (1.3%) | 2 (1.5%) | – | |||||
Whether participants experienced financial problems due to additional costs or decrease in income following diagnosis of breast cancer | Yes | 125 (26.6%) | 48 (35.3%) | – | ||||
No | 309 (65.7%) | 70 (51.5%) | – | |||||
Prefer not to say | 36 (7.7%) | 18 (13.2%) | – | |||||
More worries about money following diagnosis | Not at all | 101 (21.7%) | 13 (9.6%) | – | ||||
A little | 196 (41.7%) | 46 (33.8%) | – | |||||
Quite Often | 90 (19.1%) | 28 (20.6%) | – | |||||
Very Often | 77 (16.4%) | 49 (36.0%) | – | |||||
Prefer not to say | 5 (1.1%) | 0 | – | |||||
Need for financial support to cover costs associated with breast cancer | Yes | 105 (22.3%) | 45 (33.1%) | – | ||||
No | 338 (71.9%) | 73 (53.7%) | – | |||||
Prefer not to say | 24 (5.1%) | 18 (13.2%) | – | |||||
Missing | 3 (0.6%) | 0 | – | |||||
Whether participants had problems getting financial products | No | 49 (10.4%) | 10 (7.4%) | – | ||||
Yes | 193 (41.1%) | 86 (63.2%) | – | |||||
NA | 221 (47.0%) | 39 (28.7) | – | |||||
Prefer not to say | 7 (1.5%) | 1 (0.7%) | – | |||||
Difficulties seeking help to manage physical or well-being needs related to breast cancer diagnosis | Yes | 160 (34.0%) | 63 (46.3%) | – | ||||
No | 264 (56.2%) | 63 (46.3%) | – | |||||
NA | 44 (9.4%) | 9 (6.6%) | – | |||||
Missing | 2 (0.4%) | 1 (0.7%) | – | |||||
